Renal Patient View down in Leeds.... :-(
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Renal Patient View down in Leeds.... :-(
Just a bit of a moan really (blame the perpetual rain here in Yorkshire .....Went to clinic today and found my kidney function has deteriorated again (24 % in May from 32% in March (but these results are 2 months old from last time i went) but he said he would know more (how close im getting to ESRF) from these results today (it could improve somewhat with new med's) so went on tonight to find there having severe technical problems and it could be days before results are up.....no big deal but i just hate knowing they know my results and i dont lol
"There are two kinds of people; those who are always well and those who are always sick. Most of the evils of the world come from the first sort and most of the achievement from the second"
RPV
South West Bristol also had same for good 2weeks or so with 'technical problems' etc. Can be frustrating but know Drs 'usually' ring if any real problems etc although can be pain waiting!
Hope RPV be back up n running VERY soon. If you desperatley want results sure your unit would look your results up if get chance.
all best Elaine
Hope RPV be back up n running VERY soon. If you desperatley want results sure your unit would look your results up if get chance.
all best Elaine
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- Joined: Fri Jan 26, 2007 11:46 pm
- Location: The West Riding of Yorkshire
Thanks Elaine.....actually just as i finished posting i checked again (i dont know why) and the sign has gone saying they have severe technical difficulties so fingers crossed.....maybe in the next couple of days
"There are two kinds of people; those who are always well and those who are always sick. Most of the evils of the world come from the first sort and most of the achievement from the second"
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- Posts: 85
- Joined: Fri Jan 26, 2007 11:46 pm
- Location: The West Riding of Yorkshire
hi Anon
It was a sign on the front page (after you sign in) in big bold red letters saying they'd been having severe techincal problems but were working on a solution and asked for our patience as they have a huge back-log to sort through.
My results are still not up ;-( i guess they have a back-log to sort first
I still cant understand why all major Renal units havent got Patient view-everyone has a right now to know and see there own results and especially with renal problems as its a long process,treatment and recovery and who would NOT want to be able to log online the day after they see there consultant and know what there recent results are.....stops a lot of worry and you just feel part of your treatment etc etc After all-it is us who have Renal disease/failure isnt it?? why should everyone else know how your doing except us?
Come on all you lagging behind renal units.....your patients want whats rightfully theirs!!! (not shouting at anyone on here-just the units and the people at the top themselves)
Really hope you get it soon in Sheffield soon-yes you can see every blood result from Creatinine to phosphate,urea, wbc,platelets,pcr etc as well as it lists all your current medication (usually,mine hasnt yet) your diagnosis and current therapies and other links to help you as well. Good luck and ask them about it next time you go,the more people that want it,maybe the more units will set it up??
It was a sign on the front page (after you sign in) in big bold red letters saying they'd been having severe techincal problems but were working on a solution and asked for our patience as they have a huge back-log to sort through.
My results are still not up ;-( i guess they have a back-log to sort first
I still cant understand why all major Renal units havent got Patient view-everyone has a right now to know and see there own results and especially with renal problems as its a long process,treatment and recovery and who would NOT want to be able to log online the day after they see there consultant and know what there recent results are.....stops a lot of worry and you just feel part of your treatment etc etc After all-it is us who have Renal disease/failure isnt it?? why should everyone else know how your doing except us?
Come on all you lagging behind renal units.....your patients want whats rightfully theirs!!! (not shouting at anyone on here-just the units and the people at the top themselves)
Really hope you get it soon in Sheffield soon-yes you can see every blood result from Creatinine to phosphate,urea, wbc,platelets,pcr etc as well as it lists all your current medication (usually,mine hasnt yet) your diagnosis and current therapies and other links to help you as well. Good luck and ask them about it next time you go,the more people that want it,maybe the more units will set it up??
"There are two kinds of people; those who are always well and those who are always sick. Most of the evils of the world come from the first sort and most of the achievement from the second"
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- Posts: 31
- Joined: Wed Sep 06, 2006 1:07 pm
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- Posts: 85
- Joined: Fri Jan 26, 2007 11:46 pm
- Location: The West Riding of Yorkshire
Yeah, iv'e got a few results on now,still quite a number missing (the ones i want lol) but at least there dribbling through now
Have a great weekend everybody
Have a great weekend everybody
"There are two kinds of people; those who are always well and those who are always sick. Most of the evils of the world come from the first sort and most of the achievement from the second"
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- Posts: 85
- Joined: Fri Jan 26, 2007 11:46 pm
- Location: The West Riding of Yorkshire
We did have RPV in Teesside, but the girl who did it has left and they are not going to replace her. I now have to ring the GP or the Consultant's secretary to get my results. Its not a satisfactory solution and I am finding it quite frustrating because the GP doesnt have the phosphate results in the same format as RPV and the Secretary just says something like 'their normal'.
Dont let a little thing like kidney disease hold you back
Tranplant November 24th 2012. Thank you so much, donor family.
Tranplant November 24th 2012. Thank you so much, donor family.