Myfortic

tommc · Post by **tommc** » Sun May 30, 2010 9:25 pm

Does anyone else take Myfortic? I am having trouble getting them my chemist is saying its a manufacturing issue and has for 3 weeks. I think they are talking tosh.

Anyone else having trouble?

Tom

xXx Holz xXx · Post by **xXx Holz xXx** » Sun May 30, 2010 10:13 pm

I can't get them from my chemist, I have to get them prescribed by the hospital (and pick them up from there)!

Sorry have no advice, other than get in touch with your hosp if your supplies are running low.

Hope you get it sorted soon x

Thumps · Post by **Thumps** » Sun May 30, 2010 10:20 pm

My chemist ALWAYS has trouble with Myfortic; I have to ask them a week or more before I need it. The issue appears to be that they have to order directly from the manufacturer, because pharmacy wholesalers sell it abroad at a profit because of the weak pound, or something... anyway, the point is they have to get it from a different source.

I'm seriously considering asking to be switched back to CellCept. The switch to Myfortic made little difference to my health or results and it's a load easier to get hold of!

tommc · Post by **tommc** » Sun May 30, 2010 10:27 pm

Thanks both. I normally have no bother with it. It is my tarc I need to give them a good week for normally. I was changed from mmf to myfortic when still in hospital I have never used cellcept. I dont want to change from a drug I have no problems with at all if I can avoid it.

Tom

Aileen · Post by **Aileen** » Mon May 31, 2010 8:17 am

Hi Tom. I have the same issue with myfortic, and generally end up having to take 4 of the smaller tabs twice daily to get the quantity prescribed. The pharmacy don't like prescribing it in this way as they say there is a cost implication. I don't remember now why I was changed from cellcept, but on one occasion when there was no myfortic to be had, I rang the transplant unit in a panic and was told, oh just go and get cellcept, it makes no difference.
Best wishes to you on your first anniversary Tom.

Aileen x

Thumps · Post by **Thumps** » Mon May 31, 2010 9:29 am

Aileen wrote:on one occasion when there was no myfortic to be had, I rang the transplant unit in a panic and was told, oh just go and get cellcept, it makes no difference.

That's very interesting. I'm gonna ask next week when I go back about switching.

I think I (and a lot of people) were switched after being told Myfortic would fix bowel issues, but it made absolutely no difference, only dropping the dosage did that.

Hope your supply issues get sorted soon tommc

Aileen · Post by **Aileen** » Mon May 31, 2010 9:34 am

THAT'S why! I too was having some 'bowel issues' (lol) back in ?June/July time and I was swapped over to myfortic. I don't think there was ever any evidence that cellcept was the culprit, but I've been on myfortic ever since.

Helen Rambaut · Post by **Helen Rambaut** » Mon May 31, 2010 12:07 pm

That's interesting. What kind of bowel issues are you talking about? Helen

Thumps · Post by **Thumps** » Mon May 31, 2010 12:32 pm

I can't speak for Aileen

but for me it was cramps after eating, urgency and loose stools, pretty much all the time, but especially in the mornings. Not quite diarrhoea, but not that far off either. It was quite depressing. I was told the CellCept (MMF) might be the cause and that the Myfortic was slower release and with enteric coating so may be better for me. Had no positive effect that I could discern, until the dose was halved. All is well these days, unless I drink too much alcohol.

tommc · Post by **tommc** » Mon May 31, 2010 7:33 pm

Thanks for the info all. It was a bowel issue that got me changed to it from MMF. Helen it would be a polite way of saying the runs. I called the renal pharmacist at the western a couple of times today and couldn't get an answer. However when I got home i had a message from the chemist saying the had the remainder of my script in. Hopefully when I get my next one I wont have the same problem.

Tom

Helen Rambaut · Post by **Helen Rambaut** » Mon May 31, 2010 8:20 pm

thanks for the info. now is one of those times when I regret posting with my real name! Here goes, I am on tacro only & often have the opposite problem.

squiggles · Post by **squiggles** » Tue Jun 01, 2010 7:25 pm

Another one here who had problems getting a hold of myfortic, i collected it from the chemist this morning which was ordered the last week of April

.I had to get some from the hospital while waiting as my GP only gives me 28 days supply.

I also had bowel trouble with mmf and was switched to myfortic in hospital.

tommc · Post by **tommc** » Wed Jun 02, 2010 11:16 pm

May be they were telling the truth on the manufacturing issues then. I only get 28 days supply as well. Same with my tarc.

Thumps · Post by **Thumps** » Thu Jun 03, 2010 11:41 am

I had a go at my GP and made them change it to 2 months supply. Every 28 days is a pain in the arse. They said it was cos I might change my medications so they didn't want to pay out for expensive drugs unnecessarily. I persuaded them that the dose might change but the drugs wouldn't!

squiggles · Post by **squiggles** » Fri Jun 25, 2010 9:02 pm

heads up.... another manufacturing problem for myfortic again