Cellcept (mmf)

Cheryl in CT · Post by **Cheryl in CT** » Fri Oct 30, 2009 6:57 am

Hi, Keith -

Yep, I've been on Cellcept for a while now - exactly 7 years! (That, and tacro & pred...)

all the best,
Cheryl
Connecticut/USA

Andy · Post by **Andy** » Fri Oct 30, 2009 8:56 am

Hey Keith

I've been on MMF for 6 years (aswell as Tac) x

trigger · Post by **trigger** » Fri Oct 30, 2009 4:15 pm

hubby been on it 3.5 yrs now along with pre 5mg and ciclosporin

laurajadedaniels · Post by **laurajadedaniels** » Mon Nov 02, 2009 3:23 pm

i was on it for about 5 years till it was stopped about 2 years ago was getting lots of infections on it so just on tack and pred now x

Anne in Va · Post by **Anne in Va** » Mon Nov 02, 2009 10:37 pm

Been on Cellcept, 750mg x2 daily and Tac (1mg am and .5mg pm) for 1 month short of six years with no problems so far. My facility tries to use the smallest possible dose of immuno drugs but don't believe they have tried monotherapy yet. I know there are facilities in the U.S. which are doing so but unfortunately I don't have any links for you. good luck with your search.

Anne

oki · Post by **oki** » Wed Nov 04, 2009 6:27 pm

Yes my hubby been on Cellcept for about 1 yr now, they seem to be helping him. He couldn't get on with Cyclophosamide. They do knock you out a little.

bigbuzzard · Post by **bigbuzzard** » Wed Nov 04, 2009 9:10 pm

from TX 2 years ago I was on Pred + Ciclosporin + MMF, then changed from Ciclo to Tacro.

Then after tacro toxicity identified as causing deterioration in function, changed to Pred + 1mg Tacro x2 + 4mg Sirolimus (Rapamune). i remember getting some advice from you when changing - which was much appreciated.

The new combo is now several months old, and seems to be great - with fewer side FX than any of the previous ones, and function stabilised.

So to answer your question, I was on MMF for a year and a half or so - but since changing I think my guts are much better.