Hey guys new member Kelly

This is the forum for the Kidney Patient Guide. We welcome feedback about the site and any information that may be of use or interest to other visitors.

IMPORTANT NOTE: This forum is not for queries that would otherwise be addressed to a doctor. If you have a question about your condition or treatment please consult your renal unit or doctor. We do not have any editorial or medical resources to answer individual queries.

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K3lly-n33ds-a-kidney
Posts: 1
Joined: Mon Nov 30, 2020 2:59 am

Hey guys new member Kelly

Post by K3lly-n33ds-a-kidney »

Hi all im Kelly and have been in end stage renal failure since 2016. Although found out when i was 19 and pregnant with first child and found out this would be in my future. I had renal refux and was not aware until pregnant and only had one kidney left which was also damaged. I was rushed into hospital with a severe urinary tract infection at 5 months pregnant finding this all out. Over the next years of my life was plagued my chronic pylon nephritis. I started peritoneal dialysis for a year before put on haemodialysis for the past 3 years. I an ONLY 37 but feel ancient :| however due to constant infection I would not be put on the transplant list until both kidneys were removed. On the 24th of September 2019 I had both my kidneys completely removed in a open nephronectony and I was cut from one side of my abdomen to the other. The most pain of my life, but after a year and 2 months I was called to be informed I am finally active on the transplant list! I have other health issues that don't exactly help my situation 😒 but I signed up because it would be nice to talk to others who truly know what I'm going through. To be be sat on dialysis and feel less isolated and understood and help others who feel the same also 🥰
JMan
Posts: 3440
Joined: Fri Apr 23, 2004 10:21 am
Location: Lives in a slightly weird bit of Shropshire called Telford!

Re: Hey guys new member Kelly

Post by JMan »

Hi Kelly

Really sorry no ones replied to your post. Isolation is unfortunately not uncommon. Thankfully there's this site and some excellent charities such as Kidney Care UK to offer support in many ways.

https://www.kidneycareuk.org/get-support/ Don't be afraid to give em a call as they offer counselling as well as financial grant support in some situations.


It's a event tougher time this year to have changes to health. I've had kidney failure for a long long while!

Good luck. A successful transplant is one of the best treatments with CKD.
"Dialysis! What is this? The dark ages!"
L. 'Bones' McCoy, ST"
Read my blog:)
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Thumps
Posts: 1252
Joined: Thu Sep 14, 2006 3:50 pm
Location: London, England

Re: Hey guys new member Kelly

Post by Thumps »

Hi Kelly! Nice to see you here. I've never been on dialysis but I have had a double nephrectomy shortly after my transplant. Wishing you all the very best!
PKD/PLD diagnosed 1994, CKD stage 5 Oct 2007, Living Donor Kidney Transplant Dec 2008, still going strong!
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