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Hi new on here - looking for guidance

Posted: Fri Nov 27, 2020 12:52 pm
by Samw
I’ve had stage 4 ckd for a number of years & ive been lucky enough that, after the first few drops, I stabilised at around 28. I was feeling unwell for a few weeks in October so requested a blood test to see if ‘physical’ cause rather than my mental health and was surprised & worried to find my kidney function had dropped to 21. I was referred by my GP back to our renal unit but they advised me that as it’s not urgent I wouldn’t be seen TIL at least January. By chance, I had another blood test this week as part of my annual diabetes review & was distressed to see its fallen again to 18 in just 2 weeks. If it continues at this rate I’ll be stage 5 by Christmas. However, I just can’t get hold of anyone to discuss this and my anxiety levels are through the roof! Any advice, suggestions, reassurances ..... would be gratefully received.

Re: Hi new on here - looking for guidance

Posted: Fri Nov 27, 2020 4:26 pm
by wagolynn
Hi Samw,
Welcome to the forum.

Have you tried phoning the consultant's secretary to see if you can arrange for the consultant to phone you or you can outline your worries to her/him so the consultant has an idea of what you are worried about.

eGFR (the usual part of the blood results they use to asses kidney function) is an estimate of GFR, and is prone to errors.

However, I think you are OK yet, dialysis is usually considered at around 8 to 10 depending on how the patient is bearing up, so you have a bit of breathing space.
Enjoy Christmas within the Covid restrictions.

Best wishes.

Re: Hi new on here - looking for guidance

Posted: Sat Nov 28, 2020 10:17 am
by Samw
Thanks Wagolynn. Have a good Christmas too