Kidney Patient Guide

Yyvette good luck 2 u starting dialysis does im sure feel very daunting at first but you will get through this im sure ;) Really felt for you wen i read u post I felt same wen my daughter started dialysis 16mnths ago age 16 now. :? Thinking of you and good luck hav posted u a private msge in more de...

Hi just to let u know have contacted NKF who are sending leaflets to us about laprascopic nephrectomy prior to our clinic appointment to see surgeon next week

Elaine & Rachael

Hello Anne, so sorry to hear Randys experience :( Hope he's feeling better soon. My daughter had her p/d under general anaesthetic but said she felt like she'd been hit by a bus:( She too was given inadequate pain relief post-op and lost quite a bit of faith in medical profession. Since then after l...

Hiya Mike just seen u post hope u get 'things' sorted out with u company etc. From my own experience if u have a union seek advise, i had been misled by my employer and my union insisted that I perued the issue about sick pay etc. with their support. Im glad i did as my employers had been paying me ...

Hiya Hal in reply to u post Rachael has same drain probs too at moment as she is fairly steady with her weight at mo maybe a little dry compared to 'usual'. Rach had to leap outta bed to try n drain on her 'doggy lead' as she calls it LOL sooo frustrating n annoying. Specially wen shes just about do...

Hiya any info/advise about bi-lateral laprascopic nephrectomy would be greatly recieved :roll: or personal experiences etc. Due to n/syndrome misbehaving and fsgs may possibly be having both kidneys removed prior to trying to get back on transplant waiting list. :?: thanks Elaine & Rachael :roll:

Hiya think the board is an improvement, however do think its quite difficuilt if u not too familiar with similar sites etc maybe a little complex. Taken me 2 days to work out how to find Forum Index LOL :roll: Ah well maybe bit more surfin and ill get use to new layout. Thanks for askin for our opin...

Hiya Andy glad u had a gr8 birthday

(((((((((((((HUGZ TO U)))))))))) FROM Elaine & Rachael glad u liked u me 2 u bear aahhhh

Speak 2 u soon

Hi im Elaine mum to Rachael age 16 who has fsgs/nephrotic syndrome. I also have 13 yr old twin girls too and a very caring hubby too. I am a Staff Nurse with 25yrs nursing experience which comes in handy!! :o I am a main carer for Rachael who is on APD overnite peritoneal dialysis for past 15 mnths....