Search found 657 matches
- Mon Feb 01, 2016 6:54 am
- Forum: The KPG Forum
- Topic: Post transplant surgery.
- Replies: 5
- Views: 12086
Re: Post transplant surgery.
I had a caesarian section. That is considered a bit close to the tx kidney and they brought a transplant surgeon into the room in case anything went wrong. They also cut more to one side - the side where the kidney isn't. The other thing was painkillers. Initially they said paracetamol only and I wa...
- Fri Jan 15, 2016 11:38 am
- Forum: The KPG Forum
- Topic: T-1 week to transplant
- Replies: 17
- Views: 43796
Re: T-1 week to transplant
Great stuff, well done to your sister - hope you both recover quickly. xx
- Fri Jan 08, 2016 10:16 pm
- Forum: The KPG Forum
- Topic: Post-kidney transplant fertility & pregnancy
- Replies: 41
- Views: 158021
Re: Post-kidney transplant fertility & pregnancy
Hannah, I asked my consultant whether my tx kidney might be squashed by a growing baby. He said no, generally the kidney is well out of the way of the action. I think he said he'd seen a problem just once but that was in some kind of special circumstances - sorry to be vague, I can't remember now. I...
- Sat Dec 19, 2015 11:48 pm
- Forum: The KPG Forum
- Topic: BKV AFTER TRANSPLANT.
- Replies: 13
- Views: 39722
Re: BKV AFTER TRANSPLANT.
Sorry to hear it Grey. If it's any comfort I had EBV and CMV after transplant, and it's still going strong at nearly 28 years out. I'm not sure about BK - I think they may have started monitoring for that more recently. In fact they were much more blasé about viruses back then. In retrospect catchin...
- Sat Dec 12, 2015 12:26 pm
- Forum: The KPG Forum
- Topic: Can it get any worse
- Replies: 62
- Views: 194073
Re: Can it get any worse
Incredible, Sporti. Very happy for you!
- Sat Nov 21, 2015 1:51 pm
- Forum: The KPG Forum
- Topic: Alport Syndrome
- Replies: 2
- Views: 6117
Re: Alport Syndrome
I'm also very surprised that no one joined the dots as you sound quite a classic case! At least you are getting proper treatment for your eyes, at last. At what age did your kidneys fail? Mine went at 14. There are 3 patterns of inheritance in Alports. I definitely have the recessive type, confirmed...
- Sat Nov 14, 2015 7:33 am
- Forum: The KPG Forum
- Topic: Flu Jab Immune Supressed ?
- Replies: 13
- Views: 30929
Re: Flu Jab Immune Supressed ?
This page summarises: http://www.nhs.uk/conditions/vaccinations/pages/which-children-are-eligible-for-the-flu-vaccine.aspx Children under 2 who need protection for whatever reason get the jab. Two, three and four year olds get the nasal spray. So do Y1 and Y2 schoolchildren It says kids who are immu...
- Wed Oct 07, 2015 10:24 pm
- Forum: The KPG Forum
- Topic: Problems plumbing in new kidney
- Replies: 3
- Views: 9069
Re: Problems plumbing in new kidney
Thats a difficult situation. All the very best - hope it goes ahead and goes well. Post when you can.
- Tue Sep 29, 2015 5:46 pm
- Forum: The KPG Forum
- Topic: BKV AFTER TRANSPLANT.
- Replies: 13
- Views: 39722
Re: BKV AFTER TRANSPLANT.
Grey, sorry to hear about this complication. It's cruel it happened just when you were getting your quality of life back. Hope its soon under control.
- Sun Sep 27, 2015 6:21 am
- Forum: The KPG Forum
- Topic: Creeping Creatinine
- Replies: 14
- Views: 39636
Re: Creeping Creatinine
I find it difficult to drink enough these days. I used to drink gallons of water with meals but just don't want so much any more and it's unpleasant to force it down. Apologies to people on fluid restrictions, I well remember how difficult that is. As a desk worker it's easier for me to drink at wor...
- Wed Sep 16, 2015 1:30 pm
- Forum: The KPG Forum
- Topic: The Team Tibbs Results are in...
- Replies: 799
- Views: 1528946
Re: The Team Tibbs Results are in...
I don't put my ciclosporin capsules in the pill box for that reason. I leave them in the foil. My routine is to take what's in the pot plus the ciclosporin capsules, am and pm. (I know the tac regime is more exacting.) They visibly change if taken from the foil and left in the open air, though in a ...
- Sun Sep 06, 2015 8:45 pm
- Forum: The KPG Forum
- Topic: Jamie Olivers Sugar Rush -
- Replies: 1
- Views: 5532
Re: Jamie Olivers Sugar Rush -
Watched - and signed. Horrifying stuff.
- Sat Sep 05, 2015 11:16 pm
- Forum: The KPG Forum
- Topic: Stage 2
- Replies: 9
- Views: 20993
Re: Stage 2
Really obvious point, but are you getting enough protein? I was on a high protein diet for years because my kidneys were peeing it out. It's a bit different though as I was a child and still growing. Might be worth asking your neph.
Best of luck. I hope you manage to get your quality of life back.
Best of luck. I hope you manage to get your quality of life back.
- Thu Sep 03, 2015 8:45 am
- Forum: The KPG Forum
- Topic: Should I tell the kids now?
- Replies: 9
- Views: 20333
Re: Should I tell the kids now?
If there are advantages to early diagnosis and treatment, I think you're obliged to tell all your children to get checked out now. (I don't know much about PKD so don't know whether that's the case. For my condition, Alports, the progress of the disease can now be delayed by years or decades through...
- Sat Aug 29, 2015 3:22 pm
- Forum: The KPG Forum
- Topic: Eventful clinic visit - any experience endoscopy or statins
- Replies: 12
- Views: 29366
Re: Eventful clinic visit - any experience endoscopy or stat
Well, a mere four years after first being referred for endoscopy I finally went through with it today - last time I cancelled the appointment :oops: . I was re-referred because I'm sometimes having difficulty swallowing. It was a mixed bag. I had both sedation and the throat spray but couldn't toler...