Search found 1735 matches
- Mon Oct 07, 2013 12:16 am
- Forum: The KPG Forum
- Topic: Kidney Charities & educating Joe Public
- Replies: 11
- Views: 16626
Re: Kidney Charities & educating Joe Public
For those who say they have lost friends. No, you haven't. They were never your friends anyway. Getting ill just proved something that was already a fact.
- Sun Sep 15, 2013 2:29 pm
- Forum: The KPG Forum
- Topic: Adult with Prune Belly Syndrome
- Replies: 4
- Views: 9571
Re: Adult with Prune Belly Syndrome
Not sure why joining a group with people from US would be a problem. A medical condition is a medical condition.
- Sun Sep 15, 2013 2:27 pm
- Forum: The KPG Forum
- Topic: Sign of getting worse?
- Replies: 29
- Views: 41508
Re: Sign of getting worse?
Wholemeal bread is high in phosphorous. The general advice is to eat products with refined grains.
- Mon Apr 22, 2013 10:29 pm
- Forum: The KPG Forum
- Topic: Can you suvive on dialysis indefinately
- Replies: 24
- Views: 62775
Re: Can you suvive on dialysis indefinately
are you genuinely interested or are you just trolling given your user name is trollking? :) I have had kidney failure for twenty plus years. for 10 of those, I had a transplant. dialysis keeps a person alive but only gives about 10% kidney function equivalent and cannot do all the hormonal actions o...
- Mon Apr 22, 2013 10:23 pm
- Forum: The KPG Forum
- Topic: Life at any price? Good idea?
- Replies: 25
- Views: 27514
Re: Life at any price? Good idea?
No free-loading for me when I visit the UK in June, a British citizen, currently living in the US, who has paid into the system in the past. I have just shelled out over £500 to pay for my dialysis supplies when I visit. Now the moment I say that I am resident, it would all be free. I expect that lo...
- Mon Apr 22, 2013 10:18 pm
- Forum: The KPG Forum
- Topic: Life at any price? Good idea?
- Replies: 25
- Views: 27514
Re: Life at any price? Good idea?
Look, it is not greed for life. you didn't ask for any of this. if you don't exist, how wonderful you have been in saving money, will be considered by no-one. I cost a lot of money, have done so for twenty plus years but I have no desire to be a moral martyr. Enjoy the fact that you are here, and do...
- Mon Apr 22, 2013 10:14 pm
- Forum: The KPG Forum
- Topic: Starting HD soon
- Replies: 4
- Views: 4973
Re: Starting HD soon
my strong recommendation is to do home hemo if possible. you have control of your life, dialysis is more frequent and gentle, and the longer you do, the better long-term outcomes are being demonstrated. so, if you have a chance to do nocturnal using preferably NxStage machine (which is portable so i...
- Mon Apr 01, 2013 1:19 pm
- Forum: The KPG Forum
- Topic: new kidney failed
- Replies: 12
- Views: 15511
Re: new kidney failed
PD is a good option, for ease of use, but depending on whether she will be a candidate for another kidney, home hemo could be a good alternative. it had been shown that in some cases, home hemo, can give survivability comparable to a deceased donor kidney transplant, whereas PD gives no better than ...
- Sat Mar 30, 2013 2:10 pm
- Forum: The KPG Forum
- Topic: Trusted Tradesman
- Replies: 12
- Views: 14330
Re: Trusted Tradesman
I imagine there is little interest because the stumbling block with transplantation is short term, i.e. in the early days of transplantation and the focus is getting people beyond that. Longer term issues are chronic rejection and I know that this is studied. The need and benefit is to look at why t...
- Fri Mar 15, 2013 12:24 pm
- Forum: The KPG Forum
- Topic: hope someone has an answer
- Replies: 10
- Views: 13308
Re: hope someone has an answer
one more thought. Given that you are new to dialysis and take furosemide, I gather that you still have residual renal function and still pass urine? If so, there is a degree of flexibility with fitting the exchanges into your life. I wouldn't stick rigidly to times particularly at night. It is about...
- Fri Mar 15, 2013 12:14 pm
- Forum: The KPG Forum
- Topic: hope someone has an answer
- Replies: 10
- Views: 13308
Re: hope someone has an answer
Mandy V is right. What is the reason for mot doing a longer,dwell at night? do you absorb too much? If so, maybe you could ask your nephrologist to prescribe icodextrin (Extraneal), a long-dwell PD solution for use at night. I do not sleep well either and have do e CAPD and used the cycler. I would ...
- Thu Mar 14, 2013 12:23 pm
- Forum: The KPG Forum
- Topic: Neph visit 11th March 2013
- Replies: 20
- Views: 25464
Re: Neph visit 11th March 2013
to me, the waiting game for to kidneys fail is worse. In a lot of ways ,it was a relief to start dialysis, both to feel better and actually encounter the unknown that I had had been worrying about. the anticiapation was worse than the reality, but I was doing PD andI don't think that this,chamge wou...
- Wed Feb 27, 2013 2:06 pm
- Forum: The KPG Forum
- Topic: trying to get a handle on this
- Replies: 1
- Views: 3343
Re: trying to get a handle on this
Unfortunately, yes. the question is, are you getting adequate dialysis? how is your kt/v? do you otherwise feel well, since the issues that you are getting, eg RLS, sleep apnea are very common in dialysis patients. people who have done longer treatments using home hemo have reported resolution of th...
- Sun Feb 24, 2013 10:35 pm
- Forum: The KPG Forum
- Topic: Symptoms of CKD your experiences
- Replies: 17
- Views: 50957
Re: Symptoms of CKD your experiences
I have not hear of these symptoms being related to CRKD at 30% function. Yes, CRKD does cause bone and joint problems, but it takes a good few years to do so at ESRD stage 5. 30% function from the point of regulating factors which provoke symtptoms in ESRD is not that low since in a healthy individu...
- Sun Feb 24, 2013 10:19 pm
- Forum: The KPG Forum
- Topic: Severe back pain/collapse
- Replies: 17
- Views: 23506
Re: Severe back pain/collapse
I really think that you need to stop attributing every ache and pain to kidney disease. I do not know how old you are, but what you are describing sounds like a muscle spasm. Problems from degneration of intervertebral discs is very common in the population in general. Put simply, our spines were no...