Search found 1735 matches

by amanda in CA
Mon Jan 06, 2014 10:33 pm
Forum: The KPG Forum
Topic: My MUM talking about stopping dialysis
Replies: 7
Views: 15530

Re: My MUM talking about stopping dialysis

What is at issue here is not how much dialysis she is doing, but more about how much fluid they are removing per treatment. It is not the treatment length that causes someone to feel unwell, because the more dialysis the better (think of better toxin removal), but how much fluid is removed and how q...
by amanda in CA
Thu Dec 26, 2013 3:28 am
Forum: The KPG Forum
Topic: Has anyone refused dialysis
Replies: 63
Views: 80831

Re: Has anyone refused dialysis

sport, where are you living? I live here in US. Not sure if I have emigrated here but have lived here since 2000. Live in Georgia. What is the timeline for you to be Stage 5?
by amanda in CA
Tue Dec 24, 2013 9:09 pm
Forum: The KPG Forum
Topic: Has anyone refused dialysis
Replies: 63
Views: 80831

Re: Has anyone refused dialysis

Glad to hear this news
by amanda in CA
Fri Dec 06, 2013 9:56 pm
Forum: The KPG Forum
Topic: Has anyone refused dialysis
Replies: 63
Views: 80831

Re: Has anyone refused dialysis

how am I attacking you, Gray? I am not being abusive, name-calling or anything, I do know what is in keeping with this forum. Sometimes people are just externalizing what they are thinking. I am simply stating that you are wrong in telling another human being how to deal with a life-changing decisio...
by amanda in CA
Fri Dec 06, 2013 5:58 pm
Forum: The KPG Forum
Topic: Has anyone refused dialysis
Replies: 63
Views: 80831

Re: Has anyone refused dialysis

grey, I understood completely what you said, and your clarification as not helped at all. I greatly admire those disfigured servicemen and women who pick up the pieces of their lives and carry on (and I am sure that there are a fair number who don't). However, I still cannot understand the reference...
by amanda in CA
Fri Dec 06, 2013 12:05 am
Forum: The KPG Forum
Topic: Has anyone refused dialysis
Replies: 63
Views: 80831

Re: Has anyone refused dialysis

I appreciate that everyone is entitled to their opinion, but I found Grey's reference to disfigured soldiers as pretty offensive and it was not directed at me. Lizbee merely stated her view as it related to her, and was not trying to push her view on anyone else, which is what Grey seemed to be doin...
by amanda in CA
Mon Nov 18, 2013 4:10 pm
Forum: The KPG Forum
Topic: Noisy Machine
Replies: 22
Views: 34375

Re: Noisy Machine

Some machines are quieter than others. I had mine switched out on a number of occasions for being more noisy than normal.
by amanda in CA
Sun Nov 10, 2013 2:28 am
Forum: The KPG Forum
Topic: How suppressed IS your immune system under immunosuppression
Replies: 39
Views: 51666

Re: How suppressed IS your immune system under immunosuppres

I never noticed any difference, but Of course, when you are on high doses in the early stages, then it is reasonable to take precautions to prevent exposure to infection, e.g. avoiding large crowded areas, etc.
by amanda in CA
Sun Nov 10, 2013 2:26 am
Forum: The KPG Forum
Topic: travel insurance
Replies: 7
Views: 13778

Re: travel insurance

Unifluzie, it it always worth specifically declaring your condition, as I bet that there are a lot of wriggle holes to get out of paying if not.
by amanda in CA
Mon Nov 04, 2013 3:33 am
Forum: The KPG Forum
Topic: mini dialysis machine and wearable artificial kidney?
Replies: 7
Views: 16683

Re: mini dialysis machine and wearable artificial kidney?

Has your uncle considered home dialysis, either peritoneal, or home haemo- dialysis? Google NxStage for a portable haemo- dialysis machine. It is available in the UK although I have no knowledge about how readily available it is., i,e. which dialysis clinics support it. Suggest you get your uncle to...
by amanda in CA
Mon Nov 04, 2013 3:23 am
Forum: The KPG Forum
Topic: mini dialysis machine and wearable artificial kidney?
Replies: 7
Views: 16683

Re: mini dialysis machine and wearable artificial kidney?

There is currently no mini dialysis machine. Both the wearanle and implantable kidneys are still just prototypes. At the moment, the developers are still seeking funding to develop these. Even uf their development continues, they are still several years away.
by amanda in CA
Fri Oct 25, 2013 1:10 pm
Forum: The KPG Forum
Topic: travel insurance
Replies: 7
Views: 13778

travel insurance

My friend's parents just had a quote from a company called Free spirit for travel insurance and were able to get coverage at a reasonable price despite pre-existing medical condiotions.

http://www.freespirittravelinsurance.com
by amanda in CA
Tue Oct 22, 2013 1:25 pm
Forum: The KPG Forum
Topic: Hydrex Hand Rub.
Replies: 2
Views: 15674

Re: Hydrex Hand Rub.

Amazon?
by amanda in CA
Mon Oct 21, 2013 3:37 pm
Forum: The KPG Forum
Topic: APD machines now free on Easyjet
Replies: 13
Views: 19019

Re: APD machines now free on Easyjet

MandyV, I am still doing well on home hemo, and Duh, the thread was about APD machines, not NxStage. My APD machine always went in the cabin with me. After it tested positive for explosives once when it was swabbed, I always wiped it down with bleach. I think that it is betadine that gives rise to a...
by amanda in CA
Tue Oct 08, 2013 11:08 pm
Forum: The KPG Forum
Topic: APD machines now free on Easyjet
Replies: 13
Views: 19019

Re: APD machines now free on Easyjet

MandyV, a hard sided case is necessary. The NxStage machine takes up a lot of room and I think that it may be difficult to insist that it is in the cabin. Furthermore, if it went in the hold in a soft-sided case, there would, I think, be a liability issue for the patient if it were to get damaged. T...