Kidney Patient Guide

Hey Jonny & Everyone

Take this test

http://www.whoshouldyouvotefor.com/

Helen

Remember that it is up to your grandfather to decide if he wants the doctors to talk to you and how much he wants you to know. It is called patient confidentiality.

Helen

hello from another Helen sounds like you need to get the underlying health issue looked at. The thing is being low in iron or needing epo means that you may well feel not as fit as some other transplantees. If you get tearful then it sounds as if all is not well. Can you call up the renal tx clinic ...

Thanks Nicola I think the decision we made was not so very hard. We took lots of factors into consideration. It has been the right decision. It's living with the decision which has been hard because being right doesn't take away the feeling of wanting to have children and the sadness that leaves. Am...

I have said it before and I'll say it again. I think we should look at all the possible options to increase organ & tissue donation. While some talk of the slippery slope I am afraid that collectively society is leaving people to die who could otherwise have a chance of living life if we could f...

And I watched a repeat of last week's last night (monday) late at 11.20pm which was about the intensive care unit.

Expect it will also be available on iplayer.

Helen

Ok I am not trying to conceive but I understand about wanting children & not having them. The other day I went to a transplant seminar to talk to patients about what it's like to go through the op and one of the live donors had brought her very new baby along. And I was astonished to be told, wh...

Jooms I am very sorry to hear that your wife was eating grapefruit after her operation. But possibly at that time there was not a reason to suppose that transplant patients should not eat grapefruit. I dont know about the effects on your wife's anti rejection medicine but I do know that for me takin...

I am sorry Amanda. Is the consultant a nephrologist or obs & gynae? 20 years ago I was told that if I became pregnant then I could expect to be monitored very carefully so I suppose in your position I'd expect that - monitoring - rather than gloomy prognosis each time I showed up. Hang in there....

Hi Lincoln

I know of a couple of people who are on kpg who might be able to help you so hopefully they'll reply. And they might very well send you a pm and not post in public.

Helen

Dear Amanda What I say may also be a cause of unnecessary worry but it is also a lesson which sheds light on what can happen when special attention is not paid to someone who is known to suffer from (even a minor) renal impairment and has a family history which is relevant. A young woman was under t...

Thank you guys. Must say the last 3 years have raced by compared with the 3 years on PD which dragged so much in the last year. Cant believe its 4 years since I found the site and met everyone. Like others before me I know I am posting much less now but that's also a good thing because I am getting ...

copying what I put on my facebook page today

remembering 11th April 2007 when Stephen Farrow so generously gave me the precious & priceless gift of life. Can't thank him, Prof Nadey Hakim & the renal transplant team enough. Three years and counting. The best is yet to come.

Helen

Here's a contribution from a friend in Canada who had her op just 3 weeks before mine, 3 years ago. She had the nephrectomy & a live donor op from her husband in one go. "Hi Helen Sorry I havent replied earlier but was driving across Canada in my Smart car from Vancouver to Ottawa where I a...

There'll be a lot of young candidates fighting this election who feel that they can make a difference. They won't all win their seats and many will keep trying elsewhere until they do. The wind of change is blowing through parliament sweeping out the old & bringing in the new. This one is worth ...