Kidney Patient Guide

I'm not sure that's accurate, Smudge - I wasn't allowed home on day 6 as there was threatened rejection - then followed scan, xray and a mega infusion of steroids just in case - resulting me staying in hospital for an extra few days as a precaution - always been honest about that with Tesco and they...

again - I'll recommend Tesco travel insurance for post transplantees - very reasonable and fully comprehensive If anyone's having problems getting insurance, that is

A.

Happy to report that a good dentist in the UK will be aware of the need to measure gum pockets post transplant and will do so on a regular basis for comparison purposes. If you are post transplant and on immunos, and your dentist is not doing this at check ups, you could always make her/him aware of...

Hi folks, I'm super vigilant with regard to dental health and fortunately have not needed treatment since some time before transplant ... I do however, attend my dentist 4 monthly so that he can keep an eye on my gums, given the effect of the immunos. No problems so far. I have checked though and it...

Violent. It really isn't anywhere close to as horrible as you fear it is going to be, in my experience. I wouldn't have been able to walk to the next bay to see my husband the day after if it had been! (although to be fair it was a slow old walk) Also I don't know if it's changed since I was transpl...

Hey Violet. I had my transplant in LGH last year and I am amazed they haven't told you what to expect. They (the transplant co-ordinators Rose and Adele) were very clear with regard to the procedure and the thereafters, but yes, you can expect to have a drain. You'll have a catheter, and probably a ...

I've gone with Tesco again, they've insured me and Trev (donor) for £112 for almost a month in California. This included Trev's addiction to higher risk water activities - like surfing! I think that's a pretty good deal.

Aileen x

Funny you should say that - because! That is exactly what I did this morning and Novartis could not have been more helpful or pleasant :) They immediately phoned my local Boots branch and suggested a better ordering process, and immediately dispatched some Myfortic to Boots. Their chosen method of t...

Hi folks, I've bumped this back up cos I'm wondering if things are any better. Personally, they could be pretty dire due to the scarcity of said drug, I'm out of it completely tomorrow and as a last resort I'm going to throw myself on the mercy of the renal pharmacy attached to the transplant unit (...

Hey Laura :) can't say I've had cramp exactly, more of a feeling, imagined or otherwise, of the kidney 'bedding in', which is not unpleasant. Still a bit lopsided over the lower abdominal area but I have no worries about that, you can't notice with jeans or other clothing anyway. I know by now the n...

Hi there Chris, I have polycystic kidneys also, but was lucky enough to have a successful transplant in February last year just before I would have started dialysis. Sorry to read about your troubles; I've looked down your list and the only symptom I had was the tiredness in the end stage. I know I ...

Hi all We all deal with adversity differently. Some can't get beyond the negatives, others look for all the positives. This is evident on these boards and in particular on this thread. What helped me was something my GP once said and that was, as a medical professional of course he viewed kidney dis...

Fantastic news Matthew, now all you and Eileen have to do is enjoy your recovery :) I still drink lots of water, even 17 months on and that's no chore given the current climate in our neck of the woods. Interesting to read about your drug trial, it's giving something back which was why I was happy t...

I was always cold prior to transplant

Hello again Matthew, the time has come then, eh?! You'll be in good hands, I can vouch for the prof. Re trialling the drugs - they appear to do this all the time with random start dates, it appears you are going to be started right off the bat. Do they have a control group also? The trial that has j...