Kidney Patient Guide

Hi Kelly Really sorry no ones replied to your post. Isolation is unfortunately not uncommon. Thankfully there's this site and some excellent charities such as Kidney Care UK to offer support in many ways. https://www.kidneycareuk.org/get-support/ Don't be afraid to give em a call as they offer couns...

Got both the Gov and LA letter a few days ago. I live in a high peak area but low case 'ward'. Still scary. It suggests registering again https://www.gov.uk/coronavirus-shielding-support To be honest the 'local help' phonically were OK, my partner who has MS got nothing, and the food parcels were en...

This may be of interest to some. The Renal Support Network, a US patient led charity hosts Hope Week , ending today. The last webinar is on today https://www.rsnhope.org Even if your not in the USA I've found it interesting. Starts about 6 PM GMT (2PM Pacific) The last session is on Children and Par...

Home Dialysis UK Webinar https://zoom.us/webinar/register/WN_aq-syz5ERsKFJiiLGdLZJQ I’ve just booked. National Kidney Federation Webinar: Increasing Home Dialysis in the Context of COVID-19 Wednesday 30th September 5:00 p.m. to 6:30 p.m. The National Kidney Federation (NKF) would like you to join a...

You should be able select a message then you get the options with a dropdown menu

Click on 'Go' then it gives an option to delete the message.

I couldn't find a way to 'select' all.

If your not getting the dropdown menu try a different browser?

Here we go again. Staff not fully informed/trained/or aware of dialysis side effects, can't or don't give an informed answer to patient, or give a 'fob off one'. There are many things that can give similar effects. Is the machine your on set to 'profiling' sometimes called 'sodium profiling' this is...

Wow what a thread, haven't logged in for a while. Been instructed to self isolate with my partner from March 13th. And did get a letter from my home heamo team, Food parcels coming in, stuff we don't need we give back to the food bank so nothing wasted, and so the circle goes round. Been attaching t...

A small mixed blessing reported from a friend on heamo in the unit. Now that clinics are cancelled she says she's never been in and out of the unit for dialysis so quickly!

A hopeful new year

Christmas this year wasn't;t.. Well very Christmasy.. Black dog hit me on Christmas eve and is still dragging me down.

Euegh...

Not local, sadly rather down the road. But I'm sure if you post in the KPA forums and arrange your own meetup you might get more interest.

Good luck..

Welcome to the group:)

If you take any form of medications, and have ever thrown some away, taken back to chemist to be destroyed, this is the petition for you. The pharmaceutical industry makes enough profit to come up with a solution. https://www.change.org/p/matthew-hancock-mp-stop-the-waste-of-expensive-prescription-m...

https://www.facebook.com/media/set/?set ... 02a3b3a45b

Is my home setup

Defiantly keep the 'basics' of the first website, even if updated (some support charities have changed name etc). The number of times I've shared the animations to friends, staff, etc I've lost count of. So please please find a way to keep them. We dream for the end of Flash, but while it lasts:) Ev...

Hi There are lots of us not on the list (after 3 transplants, lifelong dialysis is my lifeline). On this forum and many of the other Such as IhateDialysis (USA) Davita (USA) and the many Facebook Groups for charities and other organisations. Theres also HomeDialysis Central and an NXstage users grou...