Kidney Patient Guide

Hi! I have to say that you guys are drinking a LOT! :wink: Seriously, though,-when I was on dialysis, I was allowed 240 ml per day-I was pleasantly surprised to find that when we took a trip to Florida (1976) the unit there let their patients EAT and DRINK on dialysis! I was floored! :shock: Nothing...

Hi Jim! I had both my kidneys removed prior to my transplant because they were causing uncontrollable high blood pressure and were no good anyway. When they removed mine, they took them out the front-an incision down the front of my abdomen. :roll: I don't know why they did it this way, but they wer...

Thanks, Anne...you are certainly right...the doctors do not know everything despite the impression they sometimes give! You have been on this "kidney roller coaster " a long time-glad you are still "alive and kicking"!
Love,
Pam

Hi Natalie! I don't know if I would count TOO much on stats-like Cheryl said, everyone is different and many on this board are defying the statistics! I cannot remember the specific antigen match of my transplant but it was a cadaver transplant and I have never had a hint of rejection. It has lasted...

Hi! When I got my second transplant in 1977, the only anti-rejection meds available were the standard Prednisone and Imuran which I am on to this day, but of course at much lower doses. I believe I took 60 mgs of Pred at the beginning and now take only 12 and a half every other day. I am a quite sma...

Dear Rachel, Please forgive me for not posting sooner... :oops: I hope you had a wonderful transplant anniversary and have many, many more in the future!! :D What did you do for the day? Tell Krystal hi for me, ok? :wink: Much love to you and may God bless you every day! :D 8) Love, Pam

Hi Jack, I just want you to know that you are not alone...when I began dialysis some 30 yrs ago, I too was probably the only one under the age of 50! :wink: I have to say that since the invention of the Internet, it has certainly made things easier for those of us who happen to have had severe illne...

[color=red][/color] I am so with you on the "doctor" problem! :x I have had so much trouble with various docs and now my transplant surgeon acts as if he cares less about my health one way or the other. I am usually the last one before lunch and it seems as if he is hurried to get there......

Hi- Just wanted to say by all means write to your donor family! When I was transplanted, they didn't want you to have ANY kind of contact (even an anonymous letter) to your donor family. After 27 years, all contact to mine has been lost. I have tried in the past to get in touch with them but to no a...

Dear Christine, I just want to tell you that I am sorry that your doc is so insensitive-I have been down that road before and it is an awful feeling to think your doc doesn't even care about you! :cry: I think everyone has given you great advice. Isn't it a shame that doctors are allowed to let some...

Hi all, My name is Pam and I live in Illinois in the US. I was diagnosed with Medullary Cystic Disease in 1972 at the age of 12. My younger sister also has this and had her second transplant 8 years ago. I was on hemo for awhile and had a transplant from my oldest sister in 1973-one of the first at ...