Search found 283 matches
- Wed Feb 17, 2016 10:02 am
- Forum: The KPG Forum
- Topic: Muscle pain/joint pain
- Replies: 33
- Views: 128717
Re: Muscle pain/joint pain
Hi Sally I am afraid I can't really help with your question as I am not familiar with your condition, but wanted to suggest that you started a new thread for your query, with perhaps 'cauda equine syndrome' as the title? That way it is more likely that someone who may be able to help will see your p...
- Wed Feb 17, 2016 9:53 am
- Forum: The KPG Forum
- Topic: Kidney excision biopsy - experiences, tips, please
- Replies: 5
- Views: 15942
Re: Kidney excision biopsy - experiences, tips, please
Hi Ducks Sorry to hear about your tumour being malignant but glad that they seem to have got you sorted. My husband had a partial nephrectomy back in the autumn, with a similar fortuitous tale. He was being worked up to be a living donor to me and during the tests for work up they found a tumour on ...
- Fri Aug 21, 2015 7:50 pm
- Forum: The KPG Forum
- Topic: Road to transplant......we hope....
- Replies: 34
- Views: 91332
Re: Road to transplant......we hope....
Thanks for your kind comments everyone. Just to bring you up to speed, my husband attended the follow up to his biopsy this week. Apparently the tumour, although malignant, is small and shows no sign of spread. He is going to have a partial nephrectomy in the next few weeks. Apparently they are goin...
- Fri Aug 21, 2015 7:37 pm
- Forum: The KPG Forum
- Topic: Steroid free therapy
- Replies: 8
- Views: 18694
Re: Steroid free therapy
Hi Soobee I agree with rheaybou - if you have a chance at a living donor transplant, grab it. I don't really know what your '111' match means and can only talk from my personal experience. My husband was hoping to donate to me and during the workup we were told that we only matched on 2 of 6, which ...
- Thu Aug 06, 2015 1:14 pm
- Forum: The KPG Forum
- Topic: Road to transplant......we hope....
- Replies: 34
- Views: 91332
Re: Road to transplant......we hope....
Well it seems we have reached the end of the road. My husband had his biopsy on Monday and we heard today that the tumour is malignant. Suffice to say he is absolutely devastated. Of course I know that if we weren't going through the whole work up process the cancer would not have been found so earl...
- Thu Jul 30, 2015 12:52 pm
- Forum: The KPG Forum
- Topic: Road to transplant......we hope....
- Replies: 34
- Views: 91332
Re: Road to transplant......we hope....
Okay - I am definitely panicking now...... My husband has had a 'frank' discussion with the hospital and we understand that the 'something' on his kidney is a solid mass and yes, they do suspect malignancy. They can only be sure however by doing a biopsy. This is due to be done this coming Monday an...
- Thu Jul 30, 2015 12:43 pm
- Forum: The KPG Forum
- Topic: Recipient work up
- Replies: 5
- Views: 9776
Re: Recipient work up
Hi Soobee It may have possibly been my post you saw, as I am due to have a heart scan/stress test soon. All I would say is that I understand it is different for different transplant centres. I don't know where you live but in the UK some centres will just use ECG treadmill tests, some an echo (some ...
- Thu Jul 30, 2015 12:34 pm
- Forum: The KPG Forum
- Topic: Can it get any worse
- Replies: 62
- Views: 194104
Re: Can it get any worse
Great news sporti. Good luck!
- Mon Jul 27, 2015 8:15 pm
- Forum: The KPG Forum
- Topic: Road to transplant......we hope....
- Replies: 34
- Views: 91332
Re: Road to transplant......we hope....
Okay, panicking a bit...... Last Tuesday's tests went ahead for my husband (nuclear GFR study, CT scan of kidneys with contrast, X-rays of abdomen and finally X-ray of chest). He has had a call from one of the Urologists at Guys this afternoon and they have said that the kidney sizes look fine and t...
- Mon Jul 27, 2015 7:41 pm
- Forum: The KPG Forum
- Topic: Update Jooles
- Replies: 4
- Views: 9735
Re: Update Jooles
That's great to read Jooles!
- Fri Jul 17, 2015 9:34 am
- Forum: The KPG Forum
- Topic: Road to transplant......we hope....
- Replies: 34
- Views: 91332
Re: Road to transplant......we hope....
Thanks guys.
Tibbs - that's interesting to know, thanks. Guys will definitely do two arteries, it's just they said that they won't do more than that, eg 3 and over.
Tibbs - that's interesting to know, thanks. Guys will definitely do two arteries, it's just they said that they won't do more than that, eg 3 and over.
- Thu Jul 16, 2015 11:43 am
- Forum: The KPG Forum
- Topic: Road to transplant......we hope....
- Replies: 34
- Views: 91332
Re: Road to transplant......we hope....
Well, my husband lost the weight so is scheduled for the next round of tests on Tuesday next week. It sounds as though the majority of the day will be spent at the hospital. He has got to have a GFR study done, which I understand involves an injection of some radioactive material, followed by about ...
- Mon Jul 13, 2015 6:22 pm
- Forum: The KPG Forum
- Topic: London bridges walk 2015
- Replies: 8
- Views: 29074
Re: London bridges walk 2015
Well done girls!
- Mon Jul 13, 2015 6:19 pm
- Forum: The KPG Forum
- Topic: chrisb's journey
- Replies: 82
- Views: 233021
Re: chrisb's journey
Good news Chris! Glad it went okay.
- Wed Jul 01, 2015 9:41 pm
- Forum: The KPG Forum
- Topic: Hello im Guy
- Replies: 4
- Views: 12192
Re: Hello im Guy
Hello Guy. Welcome!
Sorry to hear about your situation, especially at such a young age. I am sure that there are plenty of people on here that you can chat to about any concerns, so ask away!
Sorry to hear about your situation, especially at such a young age. I am sure that there are plenty of people on here that you can chat to about any concerns, so ask away!