Kidney Patient Guide

Hi,

I was diagnosed with IGAN last May, after having a bout of very high blood pressure and ankle swelling. These were my only symptons and until then I had never heard of it.

Dawn .

Thanks Nigel, that's very helpful.

Thanks for posting this, I was about to one asking similar questions. I'm having my tube fitted at the end of this month, and although I have read all the leaflets and gubbins I'm sure there are lots of things I still need to know. I already having to change my waredrobe as I'm a skinny jeans and ts...

Hi Barb,

Glad that the news is a bit better today.

Keeping you all in my prayers.

Dawn x

Hi, My eFGR is currently at 10% and I am due to have my PD catheter fitted at the end of the month. My Blood pressure is also very high. I too am constantly tired, with mega headaches and various aches and pains and have not been able to work since the end of January. I am hoping to feel much better...

Hi Jan, My BP is still too high, and I know we need to find something else to bring it down. I'm already taking 4 different BP tablets so not sure what else we can try. I'm just glad that he stopped the new tablet and that I feel human again. I'm at clinic every week at the moment as I went from 19%...

Thanks Liz, my consultant has now taken me off the horrible tablets and I'm feeling much better now. Went to a talk about PD and to see it in action, was all a bit overwhelming but I feel a bit more prepared Hopefully I'll continue feeling better and the sun will carrying on shining until my op. :-)...

I'm currently at 10% and due to have my PD catheter fitted at the end if April, if I last that long.
My function has been falling pretty quickly and I'm now feeling permanently ill and unable to do anything.

Dawn

Thanks for the welcome. As you'll know it's a lot to get your head around, there's so much to learn and it's so much harder because of feeling so ill all the time. I'm also have major problems with my blood pressure and I'm sure the tablets are not helping. Am hoping for some good news from my consu...

Hi, My name is Dawn, I've just stumbled across this forum and am hoping it may be useful. I have IGA Nephropathy, which was diagnosed in May 2014 when I had 25% function. I'm now down to 10% and waiting for surgery for a PD catheter. It's all very quick and quite scary. I have a brilliant husband an...