Kidney Patient Guide

Hi All! I'm home, got home yesterday (monday) and its a great place :) Thanks for praying for my Giants - they won the superbowl. We watched the game in the hospital, a bunch of us. it was actually pretty cool. although next year i want the party in MY house, with hot dogs & pepsi & hot pret...

i like to blame my irratable bouts on that but nobody believes me.. they just say "well you're angry at blah blah and blah and THAT'S why you're irratable/grouchy and NOT the medicine". whatever.

sometimes they're right and sometimes they're wrong.

~rachel~

hi everyone :wave: thanks so much for each and every one of your messages :) this is not how i envisioned a relaxing week off of work to be!!! anyway i'm doing really good now, and feeling quite good, and quite bored, and all of that. the worst part is my mouth. i have sores in my mouth. i can't eat...

IVIG - pay for it out of pocket if they won't do it - or come to america. but it does clear all the bad antibodies and gives you much better chances. if you get a kidney that isn't a perfect match you can keep it going with ivig ...

OOOH Great news

Feel good!

hi, i agree with you 1000000%. i hate how we do stuff right and people are doing it wrong yet we are the ones in trouble. don't get me started on that. ugh. we usually chalk it up to 'america', so that's not a suitable response here for obvious reasons ;) but uh, "great britian". hehehehe ...

how could a dr. ... like fire you? I dont' get it...

HOpe u don't need the surgery but if you do.. hope it goes well & u have a speedy recovery

alishe wrote:Hi Guys,

futures bright?????I have one!!!

regards

Alishe

You hwave one??? What's it all about????? DETAILS

I replied to this message, but I see it dissapeared????

happy Birthday tom,

i will sing 'america the beautiful' in honor of your birthday. lol.

Bill wrote:I'll read both as long as I get personalized, signed copies.

Bill

We can arrange that

yeah we have that here too G ... its a lignocaine type spray ... I tried it but its not very effective when using the knitting needles they use for haemo ... though great for general blood tests ...:0) Actually g was referring to ethyl cloride spray. You spray a stream for like 7 seconds, and the s...

ahh, so jman, who's book is coming out first? yours or mine??

Hello Pam. I also have high PTH (1500!!), and for the last 3 weeks, I've been on Sensipar. Can you take that? Has your doctor even suggested it (either you can or can't take it)? I just had bloods taken today and I should get the results by the end of the week. It'll take a while for the Sensipar t...

Hi Amanda, Have you ever looked into and or had IVIG (intravenous immune globulin)for your antibody issue? I'm currently researching this for someone, for a non tx related issue, and while it appears not to be an 'approved' form of treatment for anyone, regardless of the condition, many peoplw with ...