WOW! That's amazing, long may it continue!
I'm closing in on 13 years, eGFR 45-49, creatinine 110-120.
Search found 1114 matches
- Thu Sep 30, 2021 2:53 pm
- Forum: The KPG Forum
- Topic: 40 Year Anniversary
- Replies: 3
- Views: 6892
- Mon Sep 27, 2021 4:44 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130227
Re: Vaccines for Covid 19
Got a text from Guys inviting me for a third dose on Friday, just been and had it this afternoon. They'll ask you on arrival at a vaccine centre if it's a third dose or a booster. I gather that It's very important if you're an immunosuppressed transplant patient or someone who has been invited for a...
- Thu Sep 23, 2021 2:17 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130227
Re: Vaccines for Covid 19
I haven't. Contacted GSTT a couple of weeks ago and was told it's still in planning!
I'm going to wander into the Vaccine Hub next week with a copy of the JCVI guidance and just ask for one, see what happens....
I'm going to wander into the Vaccine Hub next week with a copy of the JCVI guidance and just ask for one, see what happens....
- Sun Aug 29, 2021 9:41 pm
- Forum: The KPG Forum
- Topic: My latest allergy - Tinzaparin!
- Replies: 3
- Views: 7246
Re: My latest allergy - Tinzaparin!
Wow - really glad you got that sorted - worth going back and letting the original dismissive nurse know? What a pain!
- Mon Jul 19, 2021 1:14 pm
- Forum: The KPG Forum
- Topic: suggestion... how about introducing ourselves??
- Replies: 3
- Views: 6667
Re: Donor tips
Hi FreyasDad I've split this out to another topic as I'm sure some folks will want to respond :) My donor has been able to carry on life as normal since she donated to me 13 years ago, once the initial healing period was complete! No changes to diet or whatever, although she was already vegan and pr...
- Mon Jun 14, 2021 3:31 pm
- Forum: The KPG Forum
- Topic: Fistula removal.
- Replies: 20
- Views: 24124
Re: Fistula removal.
Good luck!!
- Sun Jun 06, 2021 12:14 pm
- Forum: The KPG Forum
- Topic: New member introduction
- Replies: 5
- Views: 5621
Re: New member introduction
Hello! Nice to have you with us
- Fri Jun 04, 2021 8:32 am
- Forum: The KPG Forum
- Topic: Life Insurance Post Transplant
- Replies: 4
- Views: 21186
Re: Life Insurance Post Transplant
I've also relied on my company death-in-service policy since my tx. I wonder what it'd be like to try now at 13 years out...
- Wed May 19, 2021 12:38 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130227
Re: Vaccines for Covid 19
Thanks Dirverd, good to hear from you!
I'm hoping the OCTAVE study will give us some information. I'm fully expecting to need a booster shot later in the year.
I'm hoping the OCTAVE study will give us some information. I'm fully expecting to need a booster shot later in the year.
- Mon May 10, 2021 5:04 pm
- Forum: The KPG Forum
- Topic: Post renal transplant a week or two after symptoms
- Replies: 1
- Views: 3846
Re: Post renal transplant a week or two after symptoms
Welcome to the rollercoaster! Recovery from your transplant is not linear, there are ups and downs and scares and reassurances and all kinds of fun but the more time passes the easier it gets and the better we eventually feel. Wishing you all the best!
- Wed May 05, 2021 8:08 am
- Forum: The KPG Forum
- Topic: Pfizer 2
- Replies: 3
- Views: 8442
Re: Pfizer 2
My second pfizer left me with a three day hangover, it was rubbish! Hope you're feeling better now!
- Thu Apr 08, 2021 11:31 am
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130227
Re: Vaccines for Covid 19
I had Pfizer, and I also chose to take the calculated risk of cutting back my immunosuppressants by half the week after I had the jab (basically cutting out my evening doses) to give my immune system a fighting chance. I am NOT suggesting anyone should do this - it was a personal choice based on pre...
- Tue Apr 06, 2021 2:14 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130227
Re: Vaccines for Covid 19
So - had my second dose of vaccine brought forward, had it on Thursday. Properly knocked me back for about 3 days.
Good news is I did a private antibody test the day before my second dose and it looks like i've had a reasonably strong reaction to the first dose of vaccine which is great!
Good news is I did a private antibody test the day before my second dose and it looks like i've had a reasonably strong reaction to the first dose of vaccine which is great!
- Sun Mar 21, 2021 2:28 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130227
Re: Vaccines for Covid 19
Oh no. That is not good reading.
- Thu Mar 18, 2021 5:25 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130227
Re: Vaccines for Covid 19
I also pointed out to the OCTAVE researchers that they'd left their recruitment rather too late, but I suspect they were tied up in ethics forms. Real shame. I'm so frustrated that we're hearing nothing about possible efficacy for us. I'm hearing news about over 70s and cancer patients but nothing a...