Search found 262 matches

by nycpetit
Wed Apr 28, 2004 7:37 pm
Forum: The KPG Forum
Topic: Kim
Replies: 2
Views: 10702

Well

I have been losing as much as 11-15 grams a day even on prednisone..when on a high dose it abates a bit..like to seven..but really anything over 3+ was considered not worth keeping me on this..so in effect I had a result from it..but not the desired result..that said, i have still been on them for o...
by nycpetit
Sun Apr 25, 2004 4:51 pm
Forum: The KPG Forum
Topic: Breathing problems
Replies: 11
Views: 15653

My iron levels

should be fine as I just went to my neph last week..and he still seemed to feel that i didn't need iron or to boost the EPO to more than once every other week..however..who knows.maybe it has changed in a few days?? There would be weirder things I suppose...but I am feeling much better than I was wh...
by nycpetit
Sun Apr 25, 2004 3:14 pm
Forum: The KPG Forum
Topic: Kim
Replies: 2
Views: 10702

Kim

Hi You mention that you are on pred to keep the kidneys in check. Is it working? I mean, does it keep the protein loss in check? They tried that for me...for over a year now.and it hasn't worked..but I was wondering if it was for you. It would abate my protein loss a bit.but not enough....I still th...
by nycpetit
Sun Apr 25, 2004 3:10 pm
Forum: The KPG Forum
Topic: Breathing problems
Replies: 11
Views: 15653

Now I understand better

I had high potassium about a year ago...in Feb 2003...and I had just changed my hypertensive meds...no one had ever told me i needed to watch my potassium when taking them...I was complaining of a tightness in my throat..and a difficulty feeling like I could breathe deeply enough...my neph at the ti...
by nycpetit
Sat Apr 24, 2004 4:57 pm
Forum: The KPG Forum
Topic: Breathing problems
Replies: 11
Views: 15653

Potassium

so am i correct that high potassium, besides damaging the heart obviously, can cause some of this breathing difficulty as well? And also..does it ever cause diarreha? I believe I had high potassium once before..about a year ago..and felt like this..didn't realize there was a symptom from high potass...
by nycpetit
Sat Apr 24, 2004 1:16 pm
Forum: The KPG Forum
Topic: Breathing problems
Replies: 11
Views: 15653

Breathing problems

Good morning..it's a sunny NYC day here...um, a question. I do have anemia, the last count was 35...and I had been up to 37, but had backed up my EPO to one every two weeks (10000u each..big ones) ....well, my question is...do any of you feel like you are out of breath, sort of lightheaded, or like ...
by nycpetit
Fri Apr 23, 2004 11:10 pm
Forum: The KPG Forum
Topic: suggestion... how about introducing ourselves??
Replies: 946
Views: 2301702

My little story

Hi, My name is Natalie...and I live in the Big Apple, NYC. I am 34 and I guess you could say not yet in ESRD...but I am on a transplant list and in the process of getting some potential matches tested. I have FSGS and intersitial nephritis...my doctors think my kidneys were damaged from too many ant...