Kidney Patient Guide

My heart goes out to you and your family during this sad time. Many hugs and prayers for you.

Natalie

Steroids can be so evil for some! I was like Mike. Steroid resistent FSGS which I think had started as nephrotic syndrome. In any case, my protein leak would also rise very quickly when the steroids were stopped completely, but also, it never really lowered the protein leak to an acceptable amount i...

I agree with some of the others here that creatinine can fluctuate quite a bit, and I know mine did even after it was determined that I needed a transplant. LIke from 700 to 580 in a week's time. It does depend on so many factors. And the 300's are still not a good sign overall. One thing I wanted t...

I was breathless a lot pre-dialysis/transplant. (never did dialysis). And for me it was at times due to fluid overload in terms of extra effort having to be expended and my legs and body were overloaded with fluid (but not my lungs, that is pretty serious), although that will be common if you have f...

first of all, long time no see here. :) I will add that I too had swelling not only in the ankles,but the knees, thighs, stomach, arms, fingers, and face. It was actually all over, and although most of it would sink down as the day went on, it was still all over. I am sorry to hear you still have it...

albumin, low albumin is normally the cause of edema. At least it was for me. Now of course other things can cause it, but if you haven't had it before, that would be one thing to get checked. I had incredibly low albumin for much of my journey before transplant. In fact I was so swollen I frequently...

I STILL feel my kidney and you can see it quite clearly, lol. My stepdad had a very large kidney, and I am very small, about 41 kilos. I still feel it when I stretch, in fact it gets in the way. Yes, I remember feeling it. And I clearly remember eating and feeling squashed. As Bill said, it will tak...

I don't take them at all, and only had them via IV in the hospital the five days after transplant. I think if your doc is working on that, go for it. That's what they are there for, to monitor it. You will also likely feel a lot better off of them. I took them for two years, pre-transplant, and hate...

I do know of people with creatinine's as high as some of you have mentioned here. Mine crept up slowly, perhaps because from the initial time I'd lost half my kidney function,it was closely watched, and the nature of my disease seemed to ebb and flow. My question is, in England, do they advise you t...

Well, I wasn't on dialysis, but I was sick as a dog. My creatinine (I know your numbers are different there, so just add a zero to mine and take out the decimal point) was about 6.0 to 7.0 just before the transplant. And I am very small, just 41 kilos. So that was a lot for my body size. I was dialy...

I didn't personally think you've got anything to worry about in the looks department. :wink: It's natural to feel self-conscious but try to just remain positive and be yourself. I've found i can educate people a lot when they ask me questions. I was in Florida recently, and in my bathing suit, when ...

Oh, I am so thrilled for you!!! We are all anxiously awaiting news, and praying for you! Please let us know when you can, or someone else how you are getting on!

many hugs and positive thoughts
Natalie

I had a live transplant August 12th, 2004. From my stepdad. My creatinine is usually between .9 and 1.1. So far, knock on wood, so good!

sort of an offtopic. But oddly I've met some people on that site that have kidney issues as well. I'm going to put mine here, so ya'll can have an opportunity to know more about me if you want to. I apologize for a couple of my "friends" like the one with the 'butt" which I have no id...

I am so sorry it's so difficult. I can relate. One thing, there are some fruits that are okay. For example, apples. And apples are very good for the bowels. I need to dig up my list, but there are other veggies (peppers I believe, and green beans, and cucumbers) that are also okay. It's all in the p...