Kidney Patient Guide

hi Leroy, Really really sorry to hear this news :( I'm glad you're feeling positive and as BB said, who knows who your experience has inspired not only for altruistic donors but also people signing the organ donor register more generally :D Also, by donating you didn't just give one person a kidney,...

hi Suey,

Congrats

Sending you mendy vibes

Really awesome news
Wishing you a speedy recovery!

hi trish, Really sorry to hear this- I think depression is something a lot of kidney patients suffer from, not least the fact that increased toxins themselves can contribute. Have you managed to talk with someone about your worries and fears? I spent 6 months with a renal psychologist which helped e...

Hope you feel better soon

J x

Hello, Here is the info for kidney patients from the NHS Choices Q&A I’m on immunosuppressants. Am I more at risk from swine flu? Yes. If you take immunosuppressants you have a greater risk of becoming infected with any virus, including swine flu, and will be less able to fight it off once you...

hi Nelly,
that'd be fab! I'm PMing you now

J

Hello, Thought I'd just give you all an update on the health situation for anyone who might be visiting Africa with a transplant! I'm not allowed Yellow Fever as its a live vaccine. Docs are kinda spooked that I'm going to die as soon as I get off the plane :roll: I'm taking Malarone antimalarials w...

hi Mike,

I'm so sad and sorry to read this
So disappointed it didn't work out, fingers crossed for a speedy operation so Ed can get his life back again.

Lots of happy thoughts coming yours and Ed's way

Jen x

hi Thumps, Glad to hear you made 7 months! It took me a while to get any post-transplant fitness, but to be honest I was really unfit before anyway... 3 years of dialysis and no exercise properly! I slowly introduced walking and have been out regularly on weekends climbing various mountains/peaks. M...

hi Sean, Yeah, itching can be awful, especially with diabetes too it's more of a worry. I was on CAPD too and got phosphate itchiness if I ate too much dairy. I couldnt take calcium carbonate, so instead I was prescribed Renegel (sevelemer) by my neph, which was much better for me! When mine got bad...

I must have a heart of stone, as I read this book and didn't cry at all!!
The film might be different though, I cry at Neighbours sometimes purely because of the accompanying music!

Great stufff!!!!!

So pleased and proud of you Andy

hi Sean, Sorry, I only just saw this! The main reason for skin itching on dialysis is high phosphates in the blood, which kidneys and dialysis can't clear well. Your mum might have been eating a lot of foods high in phosphates (mostly dairy foods). Is she on tablets that absorb phosphate? I was on t...

awesome news!!!

Pls pass on my wishes,

J x