Search found 1116 matches

by Thumps
Tue Nov 20, 2007 10:08 pm
Forum: The KPG Forum
Topic: PKD and stage 4 - What happens now?
Replies: 9
Views: 10777

Thanks Candida :) I've already had a couple of people say that they would be willing to get tested for being a live donor for me; the hospital gave me a DVD for them this morning. My consultant reckons it would be good to look at pre-emptive transplantation before I need to get onto dialysis. Tis a ...
by Thumps
Fri Nov 16, 2007 12:15 pm
Forum: The KPG Forum
Topic: Anyone here at Guy's & St Thomas' ?
Replies: 6
Views: 6686

I've just joined the Facebook group - I got transferred to Guys from Charing X last year, got my 2nd clinic appointment next week.
by Thumps
Fri Nov 16, 2007 12:09 pm
Forum: The KPG Forum
Topic: PKD and stage 4 - What happens now?
Replies: 9
Views: 10777

I've already been pretty honest about the situation with my closest friends, and some of them have already said that they want to do the relevant tissue testing and things... I haven't quite worked out if I'm prepared for someone else to do something like that for me, it's an enormously big deal in ...
by Thumps
Thu Nov 15, 2007 10:16 pm
Forum: The KPG Forum
Topic: PKD and stage 4 - What happens now?
Replies: 9
Views: 10777

PKD and stage 4 - What happens now?

Hiya *waves* I got diagnosed with PKD about ten years ago and aside from taking BP medication every day and a few infections I've been pretty much symptom free until just recently. I had a chest infection and then, with no warning, I ended up in hospital with the worst kidney infection I've ever had...
by Thumps
Thu Sep 14, 2006 11:20 pm
Forum: The KPG Forum
Topic: Declaring with employers?
Replies: 14
Views: 10104

Thanks for all the replies. :) As you say, with function around 50-60% I'm probably worrying over nothing at this stage but I just wanted to get a sense of others' experience at this stage so I don't get caught out unexpectedly by questions later. Seems sensible that I don't mention anything until a...
by Thumps
Thu Sep 14, 2006 3:57 pm
Forum: The KPG Forum
Topic: Declaring with employers?
Replies: 14
Views: 10104

Declaring with employers?

Hi there Hopefully someone can answer this for me - apologies if it's a stupid question but it's only just occurred to me really. I've been diagnosed with APKD for the last eight years or so - I've been at the same company for seven years, and there's never been an issue with it or me taking time of...