Search found 71 matches

by Johnylefox
Thu Mar 09, 2017 12:41 am
Forum: The KPG Forum
Topic: Hunger with hemodialysis
Replies: 5
Views: 12445

Re: Hunger with hemodialysis

Yes it is, I eat for England. Then my weight goes up and the neph is like "you are carrying too much fluid" and dishes out extra sessions. The staff automatically assume any extra weight is fluid but I am eating lots. Today, Rice crispies, two toast, apple, nectarine, all you can eat Chine...
by Johnylefox
Mon Jan 23, 2017 11:24 pm
Forum: The KPG Forum
Topic: About to start PD. 'Pulling Sensation'?
Replies: 4
Views: 11637

Re: About to start PD. 'Pulling Sensation'?

I started home PD in February 2016 and by December 2016 I was on hospital heamo, one of the reasons being the cramps. You MUST empty your bowels as often as you can. Having a load of lunge up there will would almost guarantee pulling pains in my case. Paracetomal didn't really work. Get pooping, eat...
by Johnylefox
Mon Jan 23, 2017 11:20 pm
Forum: The KPG Forum
Topic: Rapid decline of EGFR
Replies: 5
Views: 13372

Re: Rapid decline of EGFR

Always make sure you are hydrated for testing as dehydration may affect eGFR results. I was told never to get hung up on a specific eGFR number, but to watch the trend. Your trend is downwards. NOW is the time to request a diagnostic test of some sorts, especially if eGFR has gone down again. If you...
by Johnylefox
Tue Jan 03, 2017 10:00 pm
Forum: The KPG Forum
Topic: Too young for anything serious??
Replies: 3
Views: 7920

Re: Too young for anything serious??

Never too young for anything really.
Age is not a shield nor a sword with kidney disease.
by Johnylefox
Tue Dec 06, 2016 12:08 am
Forum: The KPG Forum
Topic: Would you like to take part in my research?
Replies: 6
Views: 17435

Re: Would you like to take part in my research?

Hannah,

I cannot help.

But I would be interested in your findings, especially about time taking to do the tests for live donors.

Many thanks
by Johnylefox
Wed Nov 16, 2016 10:58 pm
Forum: The KPG Forum
Topic: Is Kidney Disease a Permanent Disability?
Replies: 3
Views: 10848

Re: Is Kidney Disease a Permanent Disability?

Thank you Tibbs.
You are a tremendous source of information.
Many, many thanks.
by Johnylefox
Wed Nov 16, 2016 10:02 pm
Forum: The KPG Forum
Topic: Sleeping all the time
Replies: 4
Views: 12567

Re: Sleeping all the time

Thank you one and all.
by Johnylefox
Wed Nov 16, 2016 9:01 pm
Forum: The KPG Forum
Topic: New lady
Replies: 6
Views: 17197

Re: New lady

Welcome.
Lots of great people here and on various Facebook sites.
You are certainly not alone.
PKD is not my illness, I am more of an IGA man.
Take care.
by Johnylefox
Wed Nov 16, 2016 8:18 pm
Forum: The KPG Forum
Topic: Is Kidney Disease a Permanent Disability?
Replies: 3
Views: 10848

Is Kidney Disease a Permanent Disability?

My employer recently terminated me (without actually letting me know). They owe me a deferred bonus but because I was terminated I do not receive the cash, which we really need. They said the bonus does not get paid upon termination except in instances of death or permanent disability. Surely IGA Ne...
by Johnylefox
Mon Nov 14, 2016 8:57 pm
Forum: The KPG Forum
Topic: Sleeping all the time
Replies: 4
Views: 12567

Sleeping all the time

Kidneys failed 11 months ago. Been on home PD since. I sleep all night but recently I am sleeping most of the day. I wake to take my partner to work then sleep for about 5 or 6 hours. When she gets home we eat then I sleep. I am depressed I acknowledge that. Anyone else sleep tgis much? I had iron I...
by Johnylefox
Fri Oct 28, 2016 9:46 pm
Forum: The KPG Forum
Topic: Working Overseas Post TX
Replies: 5
Views: 15324

Re: Working Overseas Post TX

Thanks all.

I actually work for an Engineering company in a contractual capacity.

My stints overseas were 6 to 8 weeks at a time.

I loved it.

Hope to get back to it.
by Johnylefox
Fri Oct 28, 2016 1:10 am
Forum: The KPG Forum
Topic: Working Overseas Post TX
Replies: 5
Views: 15324

Working Overseas Post TX

I was diagnosed with IGA in January 2014 and by January 2016 I was on dialysis. I was born and raised in the UK but for the last 7 years I worked all over the world, mainly the middle east, Qatar, Saudi, Dubai. I must be honest, I loved my job, not just travelling but the actual day to day job. I ha...
by Johnylefox
Fri Oct 28, 2016 1:00 am
Forum: The KPG Forum
Topic: How close is the end?
Replies: 13
Views: 44170

Re: How close is the end?

90 is one fantastic innings. I am 41, awaiting my first TX and I don't believe I will get anywhere near 90. Hopefully you can comfort and reassure your loved one, be with them and spend time. The question is not how long. You would not want somebody to be 90 then hit end stage renal disease, and the...
by Johnylefox
Thu Oct 13, 2016 10:40 pm
Forum: The KPG Forum
Topic: Exercise and kidney disease
Replies: 13
Views: 32591

Re: Exercise and kidney disease

Hannah, I am a dialysis patient awaiting transplant. I have completed a B Sc some years ago, winning a prize for best dissertation, and I am currently completing year 3 of a distance learning masters degree in a legal field. I remember sending hundreds of questionnaires out and getting about 40 back...
by Johnylefox
Fri Sep 23, 2016 7:10 pm
Forum: The KPG Forum
Topic: New Buttonhole Fistula screening protocol
Replies: 3
Views: 9320

Re: New Buttonhole Fistula screening protocol

I am having fistula inserted on Tuesday.
None of this has been discussed with me.
I just know PD is not working for me.
Good luck.