Kidney Patient Guide

Since at my work, we all deal with lots of kids, our school provides free flu shots for any & all employees who want them. I'll be getting mine this afternoon. Whether it helps or not, I don't know, but both my neph & my transplant center not only recommend, but actually REQUIRE them, so I j...

Nicky, I'm so sorry that things haven't been going so well for you of late. I hope you'll be feeling better very, very soon and that you'll get the go-ahead for your transplant. It WILL be worth it in the end, you know, and I just hope that things will begin to go better for you sooner, rather than ...

Oh, Jen - you do NOT need this! Give it to someone else, will you? I'm thinking about you & hoping you'll be feeling much, much better very soon!

all the best,
Cheryl

Rik - you're still ALIVE??? Geez, I thought you had left us AGES ago... Howdy, hi, and aloha! Good to see you! (write to me, will you????) And Rachel & Stevie - my thoughts are with you! (That fast breeze you feel is GOOD VIBES coming your way from across the pond!) I hope things are better for ...

Thanks, Nelly, for the update. I was going to call Jim's parents if I didn't hear something soon. I appreciate your updates (both Nelly AND Ali!) and I hope you'll continue to keep us informed.

Thanks again,
Cheryl

Hi, Keith - I'm pretty sure that Belatacept does not yet have FDA approval. Last I remember reading about it, Emory University (USA) was doing a 3 or 4 year study, but I haven't really followed up to see where it's been going... Have you tried a search using US Google (i.e. Google.com)? I am pretty ...

Jim, I am thinking about you! Wish I were there to give you a big hug!

much love,
Cheryl

Hi, Jen! Hope you're doing okay in your "new" surroundings! I've been thinking about you! Well, almost 6 years post-transplant, I am now on the "once-a-year plan", if you can believe that! I have an appointment next Wednesday, and it will be the first time I've been in since late...

Hi, Aileen! Off-topic? No such thing! OMG - music! It's what "held me together" through my pre-transplant days - and well beyond! I would lie on the floor with my headphones on, music blasting into my ears, shutting out the rest of the word! If it hadn't been for the music, I doubt I would...

Hi, Aileen - Yes, that does sound rather sudden! Still, depending on your numbers and all, maybe it will all be for the best. I have to agree that at this point, 3 months between appointments seems rather long. I'm not in the UK, so I know that the protocol may be very different, but when I was gett...

Hi, Aileen - Well, I had a living donor transplant "all lined up", but I somehow ended up getting a PD tube "installed" anyway.... I didn't use it until I went into the hospital immediately in advance of my scheduled transplant. My "numbers' had ditched so severely that I co...

Hi, Owen - Best of everything with your transplant - here's hoping for far better days ahead! I, too, have my "don't want to talk about kidneys" stages - have been in one for a while now, actually. The stages seem to come and go, but as I see it, you do what you need to do to get by. It's ...

Oh, Jane, I am so sorry about your kitty. I know how traumatic it is to lose a special pet. They're "just animals" (as so many people say), but to us petlovers, they are way more than that. You have my sympathy. Please do find yourself a new kitten! He/she will never be the same as the one...

Oh my goodness, Jane - this is too weird! I have a gorgeous gray & white longhair named Winston. He is one of 4 cats in the household... Winston has been with us since he was a kitten, and he is now 7 years old. When Winston was about 6 months old, I was broadsided myself with a diagnosis of end...

Okay, Jim, so where are the photos of Crete? (You KNOW I live vicariously thru your holidays!) My own trips to Florida to see my mother & the quick getways to the UK to see my daughter don't count as REAL vacations - can't say I've had one of THOSE in at least 12 years! Sigh. Also, just wonderin...