Search found 71 matches

by MatthewC
Wed Nov 06, 2013 8:28 pm
Forum: The KPG Forum
Topic: Creatinine Post Transplant
Replies: 6
Views: 12635

Creatinine Post Transplant

My brother's creatinine dropped to 140 by a few days after the transplant. He has just told me that last Friday (16 days post tx) it was at 154, then 174 on Monday, 178 on Tuesday and down to 163 this morning. The worrying thing is that, despite a biopsy yesterday, they are unable to explain this ri...
by MatthewC
Sun Oct 27, 2013 4:41 pm
Forum: The KPG Forum
Topic: Top Tips for those going in to have a tx
Replies: 62
Views: 415333

Re: Top Tips for those going in to have a tx

I just donated on Oct 16th to my brother, in St George's. The best advice on this thread is EARPLUGS; my brother didn't know this (and I had assumed that he would have done some research) so I gave him some when he was disturbed by the patient in the next bed who was watching the same James Bond fil...
by MatthewC
Wed Oct 23, 2013 3:48 pm
Forum: The KPG Forum
Topic: Pre-Op Donor Advice
Replies: 18
Views: 19883

Re: Pre-Op Donor Advice

Thanks for that advice Mandy - my brother and his wife think it's very helpful and will do so.

NB I know the kidney was working very quickly as I saw his catheter bag when we were both in Recovery - it was huge!
by MatthewC
Tue Oct 22, 2013 3:23 pm
Forum: The KPG Forum
Topic: Pre-Op Donor Advice
Replies: 18
Views: 19883

Re: Pre-Op Donor Advice

That's interesting, SlowLearner, thanks. My brother was down to 124 at the last count and was released on Monday after last Wednesday's operation. The surgeon has explained why mine is unsurprising to be higher than his right now, and reckons that mine will come down but that his is actually likely ...
by MatthewC
Sat Oct 19, 2013 9:51 am
Forum: The KPG Forum
Topic: Pre-Op Donor Advice
Replies: 18
Views: 19883

Re: Pre-Op Donor Advice

Well, all done on Wednesday and I was discharged on Friday. Both my brother and I are doing very well and everyone is very pleased with the progress we have made. My brother's creatinine was below 200 when measured only just after the op! I think my old kidney was producing urine as soon as it was c...
by MatthewC
Sat Oct 12, 2013 9:37 pm
Forum: The KPG Forum
Topic: Pre-Op Donor Advice
Replies: 18
Views: 19883

Re: Pre-Op Donor Advice

Thanks BB - in fact I remember reading your rather graphic story some time ago. Surprisingly when I asked onThursday I was given no warnings at all! Thanks for the advice Smudge. My brother's transplant centre isn't St George's, but our transplant nurse is also very helpful and has warned me to not ...
by MatthewC
Tue Oct 08, 2013 8:25 am
Forum: The KPG Forum
Topic: Pre-Op Donor Advice
Replies: 18
Views: 19883

Pre-Op Donor Advice

There's only a week to go now. I've been checking all sorts of sources for advice, including the Tips sticky topic above, inasmuch as it's relevant to a donor, but has any one got any last minute advice for me? Anything it would be helpful to know/take/do/avoid? Has anyone been operated on at St Geo...
by MatthewC
Thu Sep 12, 2013 12:57 pm
Forum: The KPG Forum
Topic: Worried about my child
Replies: 10
Views: 14599

Re: Worried about my child

... in the meantime my son has to go to the "nuclear medicine" department on Wednesday and have a "gammagrafia renal" (I couldn't find a translation, but basically he said that they will put a contrasting radioactive liquid in and take pictures and measure the kidneys' function. That sounds like a ...
by MatthewC
Wed Aug 28, 2013 12:29 pm
Forum: The KPG Forum
Topic: pernicious anaemia
Replies: 1
Views: 2390

Re: pernicious anaemia

Without knowing anything about pernicious anemia, from my experience as a PLD, it sounds most unlikely that she would be acceptable so I think you presume correctly. The tests they have done on me are extensive. However, ask your transplant nurse - if they know and are starting the testing process, ...
by MatthewC
Sun Aug 25, 2013 8:37 am
Forum: The KPG Forum
Topic: Appointment on 12th Aug (brought forward) bad news :(
Replies: 22
Views: 21553

Re: Appointment on 12th Aug (brought forward) bad news :(

Just bear in mind that the whole process can be very slow. From talking to people on here, on average it's about 10/11 months from first phone call to operation. Agreed - I did not mean to give the impression that my 18 months is typical - we have been deferre because my brother was not ill enough!...
by MatthewC
Thu Aug 22, 2013 3:24 pm
Forum: The KPG Forum
Topic: Appointment on 12th Aug (brought forward) bad news :(
Replies: 22
Views: 21553

Re: Appointment on 12th Aug (brought forward) bad news :(

7 people have said they'd be tested but how do they go about doing such things? I presume i'd still go on the list but wouldn't the wait be much less with having 7 potential donors already willing to be tested? As a potential donor (volunteered in Feb 2012, the op is Oct 16th - less than 8 weeks ti...
by MatthewC
Tue Jul 23, 2013 1:09 pm
Forum: The KPG Forum
Topic: The Date is set
Replies: 17
Views: 16620

Re: The Date is set

I've also had some good news recently, with which I'm quite pleased. The one thing about me with which the surgeon at the transplant centre was not impressed was my cholesterol level. It was 6.8 back in March when I first saw the surgeon. As a result my dear wife took more control of my diet; the so...
by MatthewC
Tue Jul 16, 2013 7:42 pm
Forum: The KPG Forum
Topic: The Date is set
Replies: 17
Views: 16620

Re: The Date is set

They almost always take the left kidney, as the blood vessels and the ureter tend to be longer which makes the implantiation into the recipient a bit easier. Well, they already know that the left has one artery in and one out, but the right is far more complicated, so left it is. I can't then under...
by MatthewC
Sat Jul 13, 2013 3:51 pm
Forum: The KPG Forum
Topic: The Date is set
Replies: 17
Views: 16620

The Date is set - Again

Well, the date is set again. The hospital team have acepted that my brother's "quality of life" is affected and so have agreed that the operation should be scheduled, eeven though his eGFR remains obstinately above 15% (just). I think they have accepted his evidence which was that he could not physi...
by MatthewC
Sat May 04, 2013 4:30 pm
Forum: The KPG Forum
Topic: Donation dilemma
Replies: 13
Views: 15055

Re: Donation dilemma

I have to say that I'm impressed - I'm not sure I would have volunteered as a donor for someone other than a relative. I'd agree that your donor should go and see the team on her own. I actually did nearly all my donor testing without even seeing my brother's team, as my local transplant centre did ...