Search found 71 matches

by MatthewC
Wed Apr 23, 2014 12:25 pm
Forum: The KPG Forum
Topic: When does testing for a living donor start?
Replies: 9
Views: 12748

Re: When does testing for a living donor start?

Testing multiple and fruitless live donors is expensive and therefore they are looking to keep control of such costs - some people would come forward with countless donors and want to pick 'the best' which is all very well if there were no limits on resources. For my brother I think they did tissue...
by MatthewC
Mon Apr 21, 2014 5:46 pm
Forum: The KPG Forum
Topic: When does testing for a living donor start?
Replies: 9
Views: 12748

Re: When does testing for a living donor start?

The transplant people told me that they try to time it (assuming that they get enough notice) so that by the time you have a transplant you are just at the point where having dialysis would be a good idea. Given the standard time it takes to do the work up, that should be about 10-12 months before ...
by MatthewC
Tue Feb 25, 2014 3:32 pm
Forum: The KPG Forum
Topic: One Year Post Transplant
Replies: 13
Views: 13430

Re: One Year Post Transplant

Well done; we passed our 100 day milestone recently and my brother says that he now feels "better than I have felt for I don't know how many years".
by MatthewC
Tue Jan 14, 2014 8:38 pm
Forum: The KPG Forum
Topic: Tacrolimus and Rejection
Replies: 4
Views: 8651

Re: Tacrolimus and Rejection

Thanks Mandy and MidgeMan. That's very helpful. Currently it is not good as my brother's hospital ( not St George's where the op took place) have been really messing him around with some absolutely useless medical decisions and cr@p nursing care. For some days last week they had him at Tac of 15-17 ...
by MatthewC
Sat Jan 11, 2014 12:20 pm
Forum: The KPG Forum
Topic: Tacrolimus and Rejection
Replies: 4
Views: 8651

Tacrolimus and Rejection

My brother is having a tough time; he got a throat infection before Christmas and antibiotics didn't fix it. Eventually they said it was glandular fever, so they had him in to reduce his Tac and try more antibiotics. The infection has now gone but his creatinine is all over the place and they keep c...
by MatthewC
Mon Jan 06, 2014 10:15 am
Forum: The KPG Forum
Topic: struggleing to find diagnosis even with biopsy!
Replies: 20
Views: 30223

Re: struggleing to find diagnosis even with biopsy!

what started me to worry from the start was, when i seen the following, NICE does say, if gfr drops by more than 5 in 1 year or 10 in 5 years there is a real concern and should be investigated, thx again people. But as wagolyn says above, eGFR is an estimate, not an accurate figure, so you would wa...
by MatthewC
Sun Jan 05, 2014 3:49 pm
Forum: The KPG Forum
Topic: struggleing to find diagnosis even with biopsy!
Replies: 20
Views: 30223

Re: struggleing to find diagnosis even with biopsy!

doctor initially told me that >60 was within normal range, but it aint really is it, as a gfr of 60 is 40% kidney loss. Not really; just because eGFR is less than 100 does not necessarily mean that you are ill at all. You might find this website helpful: http://www.renal.org/information-resources/t...
by MatthewC
Sun Jan 05, 2014 3:23 pm
Forum: The KPG Forum
Topic: Living Donor time scales etc
Replies: 8
Views: 14091

Re: Living Donor time scales etc

Hi Ste I agree with Joe above - it will take months to do the donor tests (see my blog below). There are so many things to be checked and they will want to be sure that they won't be at risk of actually harming your sister. With an eGFR of 6, I'm surprised you are not on dialysis already - I donated...
by MatthewC
Tue Dec 17, 2013 3:01 pm
Forum: The KPG Forum
Topic: Dip in eGFR after transplant?
Replies: 7
Views: 10909

Re: Dip in eGFR after transplant?

I would agree with Mandy. My brother does not contribute on here but he had the same sort of issue. It took about six weeks before his creatinine and Tacrolimus dose had any sort of agreement. In that time his creatinine went back up to 170-odd (and he had a biopsy) after being 142 soon after the op...
by MatthewC
Sun Dec 08, 2013 3:13 pm
Forum: The KPG Forum
Topic: waiting time for live donor transplant
Replies: 6
Views: 7880

Re: waiting time for live donor transplant

Martin You don't say how far through the testing your wife is - is she finished (up to the point to which they go until a date is fixed)? I reckon the elapsed testing time was about seven months in my case, but there were gaps in the middle as they didn't think that my brother was ill enough to be s...
by MatthewC
Thu Nov 28, 2013 10:48 am
Forum: The KPG Forum
Topic: Tissue type match
Replies: 10
Views: 14718

Re: Tissue type match

Speaking from my recent experience, I wouldn't say that blood group O is a problem as has been implied, as it is reckoned to be in 44% of the UK population (http://en.wikipedia.org/wiki/Blood_type_distribution_by_country) which is pretty high, so there should be lots out there. (NB I was told that f...
by MatthewC
Wed Nov 13, 2013 2:23 pm
Forum: The KPG Forum
Topic: Creatinine Post Transplant
Replies: 6
Views: 12635

Re: Creatinine Post Transplant

Thanks for the above - my brother was reassured by the view that this is fairly normal in the early days, and the hospital staff agreed when he asked about this that they would be more worried if it was 6 or 12 months later. His creatinine is back down to 153 and it is reckoned that possibly he was ...
by MatthewC
Wed Nov 13, 2013 2:15 pm
Forum: The KPG Forum
Topic: Finding potential donors
Replies: 18
Views: 20227

Re: Finding potentail donors

Table 5.16 at the bottom of this link http://www.organdonation.nhs.uk/statistics/transplant_activity_report/current_activity_reports/ukt/kidney_activity.pdf shows the demographic data of living donors (and their recipients) in 2012 in the UK. Two percent of living donors were over 70, and 16% were a...
by MatthewC
Tue Nov 12, 2013 4:56 pm
Forum: The KPG Forum
Topic: Finding potential donors
Replies: 18
Views: 20227

Re: Finding potentail donors

Since then my father has also come forward, but he is considered too old at 75. I don't believe that there is any specific age limit in the UK for donation - it is entirely based upon how fit the donor is, as they do not want to adversely affect the donor's life post transplant. I am told that they...
by MatthewC
Mon Nov 11, 2013 9:16 am
Forum: The KPG Forum
Topic: Finding potential donors
Replies: 18
Views: 20227

Re: Finding potential donors

I don't know how my receipient brother actually felt at the time about asking, but what he did was to get his wife to send out an e-mail stating the situation that he had reached. This was only sent to the close family of the same generation (we are a large family!) and it generated 5 responses. Bei...