Search found 75 matches
- Sat Dec 26, 2015 12:03 pm
- Forum: The KPG Forum
- Topic: Hydration after Transplant
- Replies: 10
- Views: 28870
Re: Hydration after Transplant
I had my annual hospital check last this week and asked the neph about this subject, in particular how much fluid I should take daily and whether tea, coffee and beer count. He said that he is happy if I have even just 2 litres per day, and suggested half water/cordial and half tea/coffee, so my 2.5...
- Tue Dec 01, 2015 2:37 pm
- Forum: The KPG Forum
- Topic: Kidney removal
- Replies: 3
- Views: 9524
Re: Kidney removal
Hi Janita I donated my left kidney laprascopically two years ago so I've been through this! See my blog for lots of gory details. The surgeon said to me about the possibility of opening me up if needed. Don't worry though - it's something they have to say to you and the consent form will include it ...
- Thu Nov 05, 2015 8:40 am
- Forum: The KPG Forum
- Topic: Introduction: I have IgAN
- Replies: 13
- Views: 36914
Re: Introduction: I have IgAN
Are both your sisters going? Have they not done a tissue type match yet? In my case that test was done separately on three potential donors and then only one went forward for more testing (after a family discussion as to who was the first choice!). NB The testing can take months so they need to get ...
- Thu Nov 05, 2015 8:29 am
- Forum: The KPG Forum
- Topic: Transplant Surgeon Meeting Advice
- Replies: 6
- Views: 13960
Re: Transplant Surgeon Meeting Advice
I'm surprised that they don't overlap the operations - they did at St George's for me and my brother. I thought it was just one of the mitigation factors that the kidney is "uninstalled" for as little time as possible. Or do they just not have the facilities (i.e. two adjacent theatres and...
- Fri Oct 09, 2015 1:45 pm
- Forum: The KPG Forum
- Topic: Hi again Sometime since I logged in
- Replies: 3
- Views: 9695
Re: Hi again Sometime since I logged in
Dear Liz and Chris I just want to say that I really do feel sorry for you both in your situations. I donated to my brother and we're from a large and yet pretty close family, but even so I don't think any of us family realised just how ill he actually was. The thing is, we just didn't like to ask hi...
- Fri Oct 09, 2015 1:26 pm
- Forum: The KPG Forum
- Topic: Hydration after Transplant
- Replies: 10
- Views: 28870
Re: Hydration after Transplant
Well, I spoke to a transplant nurse this morning and yes, of course, "drink a lot" does apply to donors forever. However, there is no standard of what a "lot" comprises and if you drink too much then it adversely affects your sodium level. Life is a balance , isn't it? So, I'm on...
- Mon Oct 05, 2015 4:15 pm
- Forum: The KPG Forum
- Topic: Living donor newbie
- Replies: 1
- Views: 5748
Re: Living donor newbie
Hi Craig, welcome to the forum. I donated (almost exactly two years ago) to my brother and we're both doing excellently. I have put a lot of information/advice about the whole donation selection/testing process, as well as the operation itself, on my blog (click the link at the bottom) which I start...
- Sat Oct 03, 2015 4:51 pm
- Forum: The KPG Forum
- Topic: Hydration after Transplant
- Replies: 10
- Views: 28870
Hydration after Transplant
As a donor, I was told to drink a lot after the operation but I am sure I was generally given to understand that this was for the recovery period. I am positive no-one ever said that I should maintain any sort of increased level permanently. However, logically, if recipients have to drink more perma...
- Sat Jul 25, 2015 6:50 pm
- Forum: The KPG Forum
- Topic: Numbers of organ donors dropping.....
- Replies: 9
- Views: 21477
Re: Numbers of organ donors dropping.....
I was quite surprised to learn only last year that a family can over-ride the clearly stated wishes of a deceased person who has signed a donor card (etc). It seems daft that they should even ask the family if the person is carrying a card - the consent should at the least be presumed in that case. ...
- Mon Jul 06, 2015 6:37 pm
- Forum: The KPG Forum
- Topic: Gratitude after donation of kidney
- Replies: 15
- Views: 47896
Re: Gratitude after donation of kidney
Every time I see my donor I cry. Every time I go to clinic and he gets mentioned I cry. That works both ways! As a donor, I often feel like crying about my brother - it doesn't take much to set me off. The most spectacular was at the wedding of one of his sons last year, and when he mentioned me in...
- Wed Jul 01, 2015 9:11 pm
- Forum: The KPG Forum
- Topic: Book on Kidney Donation Experience
- Replies: 15
- Views: 39683
Re: Book on Kidney Donation Experience
Sammie - I donated to my brother, also in Oct 2013; I didn't write a book but I have a blog (http://diaryofakidneydonor.blogspot.co.uk/) as I have been far too busy with a building project! Skyeskye - you are, I am sure, most welcome on here. I'm sorry your husband has had problems. Donors like him,...
- Wed Jun 10, 2015 7:51 am
- Forum: The KPG Forum
- Topic: Ethical dilemma
- Replies: 12
- Views: 34978
Re: Ethical dilemma
Hi Jbell. She has only spoken to the treating doctor about it, and he has expressed that although she is a diabetic she falls within the safety margin. I must also point out that I am from South Africa, and as far as I know, nothing precludes a diabetic patient from donating. To vex matters further...
- Sun Aug 31, 2014 1:49 pm
- Forum: The KPG Forum
- Topic: Preparing for transplant
- Replies: 5
- Views: 11807
Re: Preparing for transplant
Thank you all for the replies. I found a graph here http://www.livingdonorsonline.org/HLAData.htm that helps a lot to understand the importance of HLA matching (it's not that important). So I will try and get your advice to trust the doctors. The survival rate graph in your link is very useful. I w...
- Fri Aug 08, 2014 3:10 pm
- Forum: The KPG Forum
- Topic: hydration effect on gfr
- Replies: 8
- Views: 56307
Re: hydration effect on gfr
If you are dehydrated, such as when having a fasting blood test, then your eGFR will be lower (and creatinine higher obviously), but this is a false result and should be ignored. I have twice had my eGFR measured in such a case - once was pre-op and it gave such a low figure (60) that it would have ...
- Fri Jul 04, 2014 7:52 pm
- Forum: The KPG Forum
- Topic: Update on me and my brother
- Replies: 13
- Views: 22224
Re: Update on me and my brother
I'm keeping quiet about my age but I just got a bus pass....Chris In Trowbridge wrote:Sorry i must have missed this post, thx for reply Matthew, can i ask what age you are, cheers