Kidney Patient Guide

Hi Wagolynn,

i thought you did PD, not HD, or do you have fluid taken off with PD too?

Regards,
cph

Hi all, I'm 53 and have been on HD dialysis for just over 2 months now. Its been going fine and i have a good fistula. BUT, about 5 or 6 weeks ago a boil burst on my fistula, which is on my upper left arm, and i think it infected the skin all over this area. Gradually since then, patches of infectio...

Hi Guy, I truly sympathise with you. I'm 53 and have PKD (this is a gradual decline which doesn;t normally get to end stage until someone is in their 40's or 50's). I am now 53 and started dialysis for 2 months now, when my GFR got down to 7%. I do HD. I was not looking forward to it at all, but you...

I stopped reading the post when I got to the bit about taking Chinese medicine.

I have read reports that it can be very harmful. I would never take it.

Hi, I have posted on this forum a few times but can't remember if I introduced myself. My name is Clive, I have PKD. I found out I had it when I was 35. Its been a slow decline but now I'm 53 and my GFR is 9%. I have to have HD, as do most people with PKD (no room for PD). I haven't started dialysis...

Hi all, thankyou for your views. If anyone else has a view please add it An update from me, the owner of the company phoned me back today to ask if i have made my decision. I told him i do want the job but that i ommitted to tell him something yesterday, which may affect his decision. I told him i h...

Following on the theme of being in limbo with kidney disease ... i quit my last job about 6 months ago not because i felt ill, i felt ok but kept thinking that as my gfr was about 15 at the time that i wanted to do something else with what time i have left, rather than be a computer programmer. Now ...

Good to hear from you Grey,

how long will you be in hospital? I hope it all goes well.

Clive

Grey, i too want to wish you well. I too will be having this done soon. I am shortly going to have a fistula made (they were going to do a neck line but my live donor is temporarily unavailable). When that matures i am to start HD then they will remove one of my kidneys (i too have pkd). They said i...

Dixie, Jan and all, i feel the same, like being in limbo for the past 3 years when my function was about 22%. At that time i couldnt help thinking about it all the time even though i haven't really had any symptoms over that time except gout. Now my function is 12% and sadly things are starting to h...

Thanks Tibbs and Grey, I agree with you Tibbs - about the 2 week wait thing. I only started getting gout in 2011 and it used to be twice a year in the summer, about 2 months apart. I never took anything for it and continued going to work, even though it was excruciatingly painful. It lasted about 7 ...

Hello, iin 2014 i have been getting gout more often. My gfr is now 13. I want to start taking allopurinol but have been told you need to wait for 2 weeks after an attack before starting. Also i've been told that when you start allopurinol you may get an attack of gout so need some colchicine as well...

i know cooked tomatos are supposed to be better for you than fresh its just that
recently i have been getting gout and i think (though i may be wrong) that cooked toms ie
tinned or pasta sauce can cause gout. I may be wrong but when you get gout you try not
to get it again.

my gfr was 13 last time it was measured and my potassium was 4.9. Thats within normal range. I have never been told to avoid high potassium foods by any doctor. But i too keep reading that we should avoid them. Recently i have started eating bananas again and tomatoes (fresh only, not tinned or past...

yes i thought it took about half an hour to do. Maybe a bit of pushing and pulling but not painful.
At least thats what i've read about it. But on this forum i noticed a few people say it was an awful procedure. I'm hoping it isn't.