Search found 274 matches

by chrisb
Mon Dec 31, 2018 10:11 am
Forum: The KPG Forum
Topic: Smoked salmon
Replies: 1
Views: 13255

Smoked salmon

Hi, I have had a tradition of 40 years where I always have smoked salmon scrambled eggs and bucks fizz for breakfast on New Years Day. I had a transplant 12 months ago and I'm not sure whether I can still have the smoked salmon or not.
by chrisb
Mon Dec 31, 2018 10:06 am
Forum: The KPG Forum
Topic: Very frequent urination after tx
Replies: 21
Views: 69220

Re: Very frequent urination after tx

My transplant was 12 months ago and I still have to get up every 60-90 minutes throughout the night. During the day I can go 4 hours between needing to urinate
by chrisb
Mon Jul 09, 2018 2:10 pm
Forum: The KPG Forum
Topic: Any advice on how to prevent a headache after dialysis?
Replies: 11
Views: 30856

Re: Any advice on how to prevent a headache after dialysis?

When I started heamodialysis I would also get terrible headaches afterwards. Apparently I was on HDF and they changed it to HD only. No more headaches
by chrisb
Thu Jun 07, 2018 2:15 pm
Forum: The KPG Forum
Topic: Hair loss after transplant
Replies: 3
Views: 9067

Re: Hair loss after transplant

Thanks
by chrisb
Wed Jun 06, 2018 8:42 am
Forum: The KPG Forum
Topic: Very frequent urination after tx
Replies: 21
Views: 69220

Re: Very frequent urination after tx

I did not pass urine for 3.5 years before transplant which I had 5 months ago. I urinate every hour and feel like I urgently need to go almost all of the time. I've been told I can 'train' my bladder to hold more for longer which I am currently doing. Incidentally after causing bleeding for a month ...
by chrisb
Wed Jun 06, 2018 8:28 am
Forum: The KPG Forum
Topic: Hair loss after transplant
Replies: 3
Views: 9067

Hair loss after transplant

I had a transplant almost 6 months ago and about 6 weeks ago my hair started to fall out and continues to do so. I have been told it due to me taking Tacrolimus which of course I will have to take for the life of the kidney. Does anyone have experience of this and is it temporary or will it all go a...
by chrisb
Wed Dec 20, 2017 8:03 am
Forum: The KPG Forum
Topic: transplant call
Replies: 6
Views: 11754

Re: transplant call

2.30am
10.00pm
9.30am
by chrisb
Wed Oct 25, 2017 7:16 am
Forum: The KPG Forum
Topic: Almost mine
Replies: 2
Views: 5570

Almost mine

2.30am Saturday morning I got The Call. Massive surprise as I was not aware that I had been activated on The List. I later discovered that it had happened on the previous Thursday. Went to the transplant unit, went through all the tests and waited. I had been told that it was a perfect match and tha...
by chrisb
Thu Jul 27, 2017 8:10 am
Forum: The KPG Forum
Topic: DIY SOS
Replies: 7
Views: 15762

Re: DIY SOS

I watched that programme as well. I think they over egged the pudding for the non-educated, which isn't a bad thing but also it was scary for those of us already on dialysis with their 'facts'. I felt the need to check out the life expectancy quoted with my Neph and he also told me that it depends o...
by chrisb
Wed Apr 05, 2017 7:25 am
Forum: The KPG Forum
Topic: Which transplant centre, Plymouth or Bristol? Thoughts pls.
Replies: 6
Views: 11371

Re: Which transplant centre, Plymouth or Bristol? Thoughts p

Southmead is brand new, hence various problems including parking. One thing I will say is that they are incredibly strict about weight limits. They go by BMI despite t h e fact that it has been debunked. I have been trying and failing to get to their target for over 2 years (which means I'm not on t...
by chrisb
Wed Apr 05, 2017 7:12 am
Forum: The KPG Forum
Topic: new; daughter of mum with kidney troubles
Replies: 12
Views: 26373

Re: new; daughter of mum with kidney troubles

I love your sense of humour, that should help keep Mum's spirits. By the way I live just down the road from where they make Ribena.

Just a thought but does your mum still pass water (urinate)?
by chrisb
Thu Mar 23, 2017 2:11 pm
Forum: The KPG Forum
Topic: NKF (UK) Helpline & unsupervised volunteers - caution
Replies: 8
Views: 16523

Re: NKF (UK) Helpline & unsupervised volunteers - caution

I phoned the NKF helpline once when I was desperate for some information and had no where else to turn. I was told to "phone another charity" and had the phone put down on me. I have never rung them since and do not feel inclined to fund raise for them. I also think they should spend some of the vas...
by chrisb
Thu Mar 09, 2017 7:42 pm
Forum: The KPG Forum
Topic: Hunger with hemodialysis
Replies: 5
Views: 9788

Re: Hunger with hemodialysis

I know it's a failing of me but I object to people telling me what to eat. I know my body and it is surprising that when I have occasionally had food that are ab absolute no no and I am dreading my blood results, they are fine. I think alot of the problem with being hi gry on dialysis is boredom. De...
by chrisb
Tue Mar 07, 2017 10:57 am
Forum: The KPG Forum
Topic: low potassium drinks
Replies: 19
Views: 83554

Re: low potassium drinks

I was told that 'coke' of any description is an absolute no no which is a shame as I love Pepsi. I do admit to having a very occasional small glass
by chrisb
Sun Feb 19, 2017 5:57 pm
Forum: The KPG Forum
Topic: Neckline insertion and prickly heat r ash connection
Replies: 7
Views: 13336

Re: Neckline insertion and prickly heat r ash connection

Hi wagolyn . Interesting that you mention citric acid as the fluid they inserted was called cit.........?. I told them I thought it could only be that and they changed it to something else and the itching is starting to subside. This site is so useful for problems like this as I found during my kidn...