Kidney Patient Guide

Hi cornflake. I got diagnosed with T2 about a month after my tranplant with blood sugar of 14. My transplant team reduced my pred from 5mg to 2.5mg and subsequently to 1mg per day. I watch my carb in-take, eating typically about 90g of carbs per day. This keeps my blood sugar in a range of about 4.5...

Hi grey
Yay congrats on your transplant I hope you are enjoying life sans PD
Cathy

Jooles thrilled to hear you had your transplant I hope everything is going well for you. The first few months can be tough but as the meds are reduced things get much easier
Cathy
X

Hi midgetem, I had a baby three years ago. At the time I got pregnant my creatinine was 220. I had discussed getting pregnant with my neph beforehand and he warned me that there may be complications and that my kidneys might fail. He was very supportive and encouraging though. I was heavily monitore...

Hi all I have been meaning to update you for ages but I have been trying to get my head straight first. Physically I am feeling great :D :D My new kidney seems to be a real trooper - creatinine is generally in the 70s but hit an all time low of 61 at my last clinic!! A month after the transplant I w...

brilliant news richard
congrats
cathy

Hi jooles & Everyone New kidney is doing great, creatinine in the 80s/90s. Only one major fly in the ointment - when I was in clinic 2 weeks ago my glucose was high (14.5) n apparently now I have diabetes. Really gutted about it. They are reducing my immuno meds but seem to think it will not rev...

Hi jooles Sorry to hear you've not feeling great. Could it be heartburn? I had it bad on pd and even with the anti nausea medicine I usually felt unwell for the first 3 hours in the morning. I think that could b it as you also feel sick after naps-lying down makes the acid travel up your throat. I w...

Thanks Liz that's reassuring to hear

Grey what an articulate post. I can definitely relate to all of it. Pre pd when my kidneys were functioning at 5% and I could barely walk up the stairs people were constantly telling me how well I looked, the implication being that I must feel well. Now I've had my transplant and while it's great an...

Hi all I was in clinic yesterday and mentioned to the doc that I thought I may have a uti. She said she would get it tested. Anyway so I rang the clinic today n it seems the full results won't b back until Tuesday (cause of the bank holiday weekend). Partial results came back clear. So they just tol...

Thanks lads. I had clinic again today n my creatinine is back in the nineties thank god :D so the reduction in prograf did the trick! Also feeling much better since meds were reduced - less shaky n less nausea. So all good! Phos, hgb still low n bp still a little high but they reckon these will righ...

Had my second day clinic today. Got a bit of a fright- creatinine has jumped from the 90s to 129. The docs didn't seem overly worried though - when my prograf levels came back they were high and apparently this can cause elevated creatinine. I had an ultrasound n they said everything looked good. So...

Thanks Richard for posting this. I was just saying to my husband last night that I am having a hard time coping with the level of risk we are now exposed to - higher risk of cancer, diabetes,heart disease,....... the list seems endless. And this is when things are going really well for me! I don't w...

Hi barb
Thinking of you and praying for you and your family at this stressful time.
Cathy