Search found 75 matches
- Sat Jul 22, 2023 2:57 pm
- Forum: The KPG Forum
- Topic: "Patients Know Best"
- Replies: 8
- Views: 16465
Re: "Patients Know Best"
It seems to be one of those things that often happens in the modern world: start with a system which works, don't bother ask users and then "improve" it for the worse! My bank has done it as well - the old sensible presentation of my statement has gone to one with lots of white space and v...
- Tue Feb 28, 2023 3:11 pm
- Forum: The KPG Forum
- Topic: Advice
- Replies: 1
- Views: 3200
Re: Advice
Hi Bobby This is a late reply but the forum is very quiet these days. Did you get some more results? The ones you gave didn't look too bad, although the eGFR was a bit low (which is probably the reason for more tests). Having said it was low, mine is 55, but I'm a donor and it has gently crept up si...
- Fri Jun 17, 2022 3:13 pm
- Forum: The KPG Forum
- Topic: Live Transplant - what to expect?
- Replies: 7
- Views: 7014
Re: Live Transplant - what to expect?
I donated to my brother in 2013 (at St George's) and so, for a donor's point of view, have a look at my blog http://diaryofakidneydonor.blogspot.co.uk/. I was surprised to realise too late that he felt so bad that he hadn't ever really thought of asking the questions you are asking befor the operati...
- Fri Apr 02, 2021 3:51 pm
- Forum: The KPG Forum
- Topic: Puzzling eGFR results
- Replies: 3
- Views: 4906
Re: Puzzling eGFR results
I was told some years ago that eGFR (the "e" is for "estimated") was only usefully accurate at low figures. If you have a "normal" kidney function (say above 50), eGFR can give some very unreliable results, so I wouldn't worry about it. I think, before I donated a kidne...
- Sat Feb 20, 2021 3:41 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 128411
Re: Vaccines for Covid 19
Wife and I had ours (AZ) last Saturday - we both had a minor reaction which was slightly different. She felt very shivery for an hour or so late that evening, and then generally off colour; I woke on the Sunday feeling poorly and was off food. We both felt better late on Sunday, pretty good by Monda...
- Fri Jun 05, 2020 7:36 pm
- Forum: The KPG Forum
- Topic: Low eGFR before i'm 30 years old
- Replies: 4
- Views: 4805
Re: Low eGFR before i'm 30 years old
Don't forget that eGFR means "estimated GFR" and I believe that I heard the method of estimating is not accurate at high figures - it is used mostly for people who have a seriously low eGFR. As I recall, I had eGFR at around 70 before I donated but the accurate GFR (only ever done once!) w...
- Sun May 26, 2019 2:25 pm
- Forum: The KPG Forum
- Topic: Will diet make a difference?
- Replies: 10
- Views: 22502
Re: Will diet make a difference?
Sorry I can't help with the diet question, but your symptoms sound pretty much the same as my brother's before I donated to him. One thing i have noticed over the past few months is sore joints and general aching in my back, hips and pelvis. Even when rested in the morning, I wake up and struggle to...
- Sun Apr 14, 2019 4:25 pm
- Forum: The KPG Forum
- Topic: after a kidney transplant
- Replies: 6
- Views: 20654
Re: after a kidney transplant
thank you for your reply wagolynn,i go the renal unit at the royal London hospital every week for check ups but I really didn't think they would answer my question ,however I will ask them for information or where I can get pamplets regarding this,thanks again I would hope that every transplant cen...
- Sun Apr 14, 2019 4:17 pm
- Forum: The KPG Forum
- Topic: Does Donating a Kidney Shorten Your life?
- Replies: 4
- Views: 17475
Re: Does Donating a Kidney Shorten Your life?
No, not in my view. I'm male and I donated to my younger brother over 5 years ago - we are both in excellent health and have been ever since his medication was sorted (and his egfr is now better than mine!). I honestly do not notice the absence of a kidney at all, except for the fact that I don't us...
- Mon Aug 06, 2018 9:53 am
- Forum: The KPG Forum
- Topic: Nephrology letter
- Replies: 7
- Views: 19748
Re: Nephrology letter
While I understand that not everyone can help or know what I am asking about and if you hadn’t answered @wagolynn I would be very anxious by now . It is a sad that even thought my post generated nearly 100 views only one person tried to help . Because Wagolynn very promptly gave the answer that mos...
- Sat Jan 27, 2018 7:42 pm
- Forum: The KPG Forum
- Topic: Living Kidney donor loss earning
- Replies: 4
- Views: 11981
Re: Living Kidney donor loss earning
You might like to look at my blog http://diaryofakidneydonor.blogspot.co.uk/, especially the one headed "Ten Tips for Potential Living Kidney Donors".emmamays1978 wrote: Also any advice on what we will need to take to hospital.
Matthew
(My brother is doing great and so am I, more than 4 years on)
- Wed Aug 23, 2017 3:54 pm
- Forum: The KPG Forum
- Topic: Donor is not a tissue match
- Replies: 1
- Views: 6993
Re: Donor is not a tissue match
That's a shame but it apparently does not prevent the transplant; it depends exactly on a whole lot of things as they can now prescribe drugs to overcome the mis-match in many cases. However, are you sure that really is what was said? As a donor, I was very confused about this and I think it was bec...
- Mon Jul 10, 2017 9:35 pm
- Forum: The KPG Forum
- Topic: Donor
- Replies: 4
- Views: 11678
Re: Donor
I'm guessing it's age related, as my eGFR ia about 50 now, vs 80 before. That's fine by me as I know you lose function every year anyway, as you get past 50-ish, but my recipient (a brother 7 years younger) nw has a better eGFR than mine!
- Sun Jun 12, 2016 7:46 pm
- Forum: The KPG Forum
- Topic: Donor for iGAN Patient
- Replies: 1
- Views: 6797
Re: Donor for iGAN Patient
Hi
I put a lot of info on the donor process on my blog http://diaryofakidneydonor.blogspot.co.uk/ (donated Oct 2013). I afraid I doubt that your donor can get through the process as quickly as you hope.
HTH
Matthew
I put a lot of info on the donor process on my blog http://diaryofakidneydonor.blogspot.co.uk/ (donated Oct 2013). I afraid I doubt that your donor can get through the process as quickly as you hope.
HTH
Matthew
- Mon Mar 28, 2016 2:35 pm
- Forum: The KPG Forum
- Topic: Was My Post Deleted - Documentary Screening
- Replies: 26
- Views: 59853
Re: Was My Post Deleted - Documentary Screening
every once in a while someone comes to the forum claiming to be the bearer of a previously unknown miracle cure ... and I get on my high horse and say ... 'give it a rest fella ... do you think we would be wasting our time here if there was a miracle cure!!' Absolutely. My brother is a GP; once, wh...