Search found 1381 matches
- Mon Feb 15, 2021 1:03 pm
- Forum: The KPG Forum
- Topic: Vaccines for Covid 19
- Replies: 69
- Views: 130980
Re: Vaccines for Covid 19
Had mine nearly 2 weeks ago. Was impatient to wait for the invite from my GP so took matters into my own hands. Qualified as ECV in the 70-74 age group as a TX patient. Had a little headache and some aches a few days later, but nothing worse than I have ever had with the flu jab. Had the Oxford jab,...
- Wed Feb 13, 2019 8:23 pm
- Forum: The KPG Forum
- Topic: Long term dialysis
- Replies: 4
- Views: 19242
Re: Long term dialysis
Hi Ducker, Dropped you a message and think I remember you are at Doncaster. Maybe it won’t help, but if you need another face to vent at and maybe someone who understands dialysis to talk to then let me know and I can try and call past. Dialysis is bollock. But there is always a glimmer of hope of t...
- Mon Jan 28, 2019 9:37 pm
- Forum: The KPG Forum
- Topic: Lucky me.
- Replies: 3
- Views: 17176
Re: Lucky me.
Good luck to you both and best wishes for a speedy and trouble free recovery. 18th feb 2013, the years soon fly past and you just won’t know what hit you after all that time not taking a pee. It’s worth every second of discomfort, worry and panic. And you have the first time you see your donor after...
- Sun Jan 27, 2019 8:56 pm
- Forum: The KPG Forum
- Topic: Vegetairian on dialysis
- Replies: 8
- Views: 25349
Re: Vegetairian on dialysis
It’s a good book, hope I never have to buy another copy. I was a bad dialysis patient, but this helped.
- Thu Jan 17, 2019 8:37 pm
- Forum: The KPG Forum
- Topic: Vegetairian on dialysis
- Replies: 8
- Views: 25349
Re: Vegetairian on dialysis
As a general cook book/guide then the NFK backed book. It’s not veggie based but sure talking to a dietician they can use as a guide and adapt good meat free alternatives. https://www.amazon.co.uk/Eating-Well-Kidney-Failure-Practical/dp/1859591167/ref=nodl_ I got a copy early 2012 to help me out, th...
- Thu Jan 17, 2019 8:33 pm
- Forum: The KPG Forum
- Topic: Life Insurance Post Transplant
- Replies: 4
- Views: 21338
Re: Life Insurance Post Transplant
I’m lucky to have life insurance through the company I work for, covers existing medical issues. Looked into it for a private policy and it’s very expensive post TX, even 5 years out.
- Mon Oct 15, 2018 10:58 am
- Forum: The KPG Forum
- Topic: Lost the race
- Replies: 9
- Views: 27379
Re: Lost the race
I took a punt and lost. I ran out of kidney function before a possible transplant was organised. Consequently I'm the proud owner of a tunneled neckline as I did not have a fistula. It happens very quickly when it happens that's for sure. I've now had 3 consecutive days of haemo and now will settle...
- Mon Oct 15, 2018 10:54 am
- Forum: The KPG Forum
- Topic: Anyone experienced worm-like white discharge in urine?
- Replies: 28
- Views: 456280
Re: Anyone experienced worm-like white discharge in urine?
I had also experienced this problem.When i went to doctors they subjected me to do ultrasound,Urine test etc but nothing found and told me that all ok.But i had felt weekness and pain in kidney after urine but doctors could not judge disease.After this experience i went for homeopathic medicine and...
- Mon Oct 15, 2018 10:05 am
- Forum: The KPG Forum
- Topic: Mycophenolate change
- Replies: 0
- Views: 43046
Mycophenolate change
I have been swapped from Myfenax branded Mycophenolate to a generic (made in same factory I am told (now an off brown and not white). As with many on this amazing drug I will have 3-4 bouts of upset stomach over 12 months and it will pass in 2-3 days. Now moving to the new supplied version I have ha...
- Tue Sep 25, 2018 3:52 pm
- Forum: The KPG Forum
- Topic: Unidentified Disease
- Replies: 13
- Views: 48851
Re: Unidentified Disease
Could it be that the condition is just a mutation of Alports that has not been identified? My fault is the only reported mutation and is Alports, it seems that more variations are being found. Prof Albert Ong at Sheffield University is a genetic kidney disease expert attached to Sheffield Northern G...
- Tue Sep 25, 2018 9:35 am
- Forum: The KPG Forum
- Topic: Transplant question
- Replies: 10
- Views: 23216
Re: Transplant question
It was about this time 7 years ago I joined the list. Any call at home or on my mobile woul dhave me jumping and rushing to the phone. When going away for a few days I was just asked to let the transplant unit know (within UK) and would be taken off (suspended) the TX list for time out of the UK on ...
- Wed Apr 18, 2018 9:00 am
- Forum: The KPG Forum
- Topic: Fistula pressure
- Replies: 15
- Views: 38056
Re: Fistula pressure
There is no escaping from the fact a neckline can can only achieve half the flow rate of a fistula, and this will be inadequate if the kidneys have stopped working.. Was never told that about my Tesio line. Maybe that is why my numbers took so long to get to an acceptable level for the LD transplan...
- Wed Apr 18, 2018 7:54 am
- Forum: The KPG Forum
- Topic: Size of PD supplies for transport
- Replies: 5
- Views: 11309
Re: Size of PD supplies for transport
The amount you will need to transport will all depend on your prescription, this is liable to change. PD supplies were delivered once a month from Baxter with about 3-4 week buffer stock. https://fsgssucks.blogspot.co.uk/2014/11/week-3-dialysis-transition-from-hemo-to.html This image is what you sho...
- Mon Apr 02, 2018 1:40 pm
- Forum: The KPG Forum
- Topic: Fear of tx failure?
- Replies: 9
- Views: 24930
Re: Fear of tx failure?
Having the same niggling thoughts at the back of my mind. Sat here with my daughter playing and thinking how would she be without her dad three mornings a week, or sleeping all weekend. How would we cope with our finances? Would I be lucky enough to get a second transplant. The whole 10 year life ex...
- Wed Mar 21, 2018 9:16 pm
- Forum: The KPG Forum
- Topic: Hospital stay after transplant?
- Replies: 14
- Views: 40131
Re: Hospital stay after transplant?
You are entertained in hospital, given little tasks such as fluid balance to pass the time between meals and I was educated on medication on three occasions. You may have the delightful removal of any neckline/PD catch to have done, took my PD catch out at same time as transplant but had tunnelled n...