Search found 209 matches

by dirverd
Fri Mar 18, 2022 12:33 pm
Forum: The KPG Forum
Topic: My Covid experience…so far
Replies: 5
Views: 7457

Re: My Covid experience…so far

Update. I’m actually feeling much better. But after another day of chasing how to get the antivirals, I just took myself to St Thomas A&E and then they sent me to the CMDU (Covid medicine delivery unit) at St Thomas’ At the CMDU the Dr. Said it was still worth me having the antiviral treatment d...
by dirverd
Wed Mar 16, 2022 8:28 pm
Forum: The KPG Forum
Topic: My Covid experience…so far
Replies: 5
Views: 7457

My Covid experience…so far

As fellow TX patients I thought you’d be interested to hear how I’m getting on after testing positive on Monday. I’ve had all my jabs (all 4) and I’m on 1.5 Tac BD, MMF 250 BD and 5 pred. I had my kidney from my brother about 10 years ago. Both my wife and daughter tested positive on Saturday, so I ...
by dirverd
Mon May 17, 2021 9:03 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127924

Re: Vaccines for Covid 19

Hi all, I used to post on here quite a lot (through dialysis, PD and Heamo) then I was lucky enough to get a TX from my brother 9 years ago. I had a chat with Guys (my hospital) today about my worries about the vaccine’s effectiveness. What I was told was that while our meds cause lower antibodies p...
by dirverd
Tue Sep 13, 2016 9:10 am
Forum: The KPG Forum
Topic: 12th Transplantiversary
Replies: 10
Views: 31923

Re: 12th Transplantiversary

Well done on the climbing.

Awesome.

Nice to hear about your good news on 12th anniversary, too.

Congrats!
by dirverd
Fri Sep 02, 2016 2:05 pm
Forum: The KPG Forum
Topic: Transplant Triathlete
Replies: 0
Views: 34808

Transplant Triathlete

Hi, I first joined here when I discovered I had kidney disease (with an eGFR of 40) about 5 years ago. Since then I've experienced pretty much everything someone with kidney failure has to go though: Kidney failure itself and the symptoms that go with it (gout, high blood pressure EPO injections, sw...
by dirverd
Wed Mar 12, 2014 9:37 pm
Forum: The KPG Forum
Topic: BK virus
Replies: 18
Views: 57640

Re: BK virus

This what the National Kidney Federation says about the BK Virus. There's not much info anywhere about it. Even the Drs don't really know much about it. I got my results back and it's negative again. Looks like it's finally gone! Woo hoo! "BK is a virus that causes a minor illness in healthy pe...
by dirverd
Sun Mar 09, 2014 6:38 pm
Forum: The KPG Forum
Topic: BK virus
Replies: 18
Views: 57640

Re: BK virus

Yes, I've had it for about a year. It a disease that most people have but it only becomes active when the patient takes immuno drugs. It can cause creatinine to rise. What used to happen was the Drs would take this as a rejection episode. And up the immunos, making it worse. However, nowadays they t...
by dirverd
Sun Nov 17, 2013 8:45 pm
Forum: The KPG Forum
Topic: Exercise and dialysis
Replies: 7
Views: 10447

Re: Exercise and dialysis

It totally depends how you feel. at it's lowest my HB was around 7. During this time I trained and raced in a 10k. Very slow time compared to my 'fit' time but I ran the whole thing. I also used to go bike riding. I could ride about 50/60k but where you'll really struggle is hills. It's like someone...
by dirverd
Thu Nov 14, 2013 1:15 pm
Forum: The KPG Forum
Topic: BK virus finally gone!!!!
Replies: 2
Views: 6825

Re: BK virus finally gone!!!!

I didn't have any symptoms. At Guys they routinely check for it (I think) after 3 months.
by dirverd
Wed Nov 13, 2013 8:59 pm
Forum: The KPG Forum
Topic: BK virus finally gone!!!!
Replies: 2
Views: 6825

BK virus finally gone!!!!

After a year it looks like my BK virus has finally gone. There is no cure and it can lead to BK nephropathy, which damages the kidneys. The protocol to deal with it, is lower your drugs until there's enough of your immune system left to fight it. (But not so much you get an acute rejection episode) ...
by dirverd
Sat Oct 26, 2013 2:14 pm
Forum: The KPG Forum
Topic: chrisb's journey
Replies: 82
Views: 232999

Re: chrisb's journey

Your route dialysis sounds very similar to mine. I went on APD, while I was waiting for my brother to have his tests. My tube got infected and had a neckline fitted (although it's I don't know why they call it this its more like a chest line) This was my lowest point, I couldn't see how things could...
by dirverd
Fri Sep 20, 2013 9:08 pm
Forum: The KPG Forum
Topic: Things to do on Dialysis
Replies: 7
Views: 13351

Re: Things to do on Dialysis

Before I started dialysis I thought I could learn a language with the extra time I had.

I didn't , I just watched loads of films and slept. But the thought was there...
by dirverd
Sat Aug 31, 2013 8:03 pm
Forum: The KPG Forum
Topic: Painful Scar post transplant
Replies: 3
Views: 5602

Re: Painful Scar post transplant

It took me about a month before I could wear jeans and a belt.

Up until then I wore track suit bottoms.

The scar a year later is still a bit numb, but no pain whatsoever.

Good luck.
by dirverd
Sat Aug 31, 2013 7:59 pm
Forum: The KPG Forum
Topic: Transplant anniversary
Replies: 5
Views: 6987

Re: Transplant anniversary

Excellent. Hope it keeps going for any years to come.
by dirverd
Sat Aug 31, 2013 7:57 pm
Forum: The KPG Forum
Topic: Exercise post transplant
Replies: 10
Views: 17482

Re: Exercise post transplant

I have been exercising 5/6 days a week for the past 8 months as I was training for a triathlon. I'm quite lucky I guess that I don't get any reaction from my drugs. And bloods say I'm as fitter than I have been years. I raced at the European Championships in Germany and came in the top 40%. And trus...