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by beabahmcgee
Tue Sep 26, 2017 3:12 am
Forum: The KPG Forum
Topic: Multiple Angiomyolipomas but no TSC. Anyone else have this?
Replies: 0
Views: 33428

Multiple Angiomyolipomas but no TSC. Anyone else have this?

I have angiomyolipomas on both kidneys and have had genetic testing for TSC (tubular sclerosis) but do not have it. Does anyone else have this type of issue? I'm asking for my primary to refer me to a cancer genetic counselor as I've been told it's very rare to have multiple AMLs and no TSC. Anyone ...