Kidney Patient Guide

Hi Notso..

Hope you are feeling better..i hope things go well with your transplant.my function is also declining and have had talks about diaylsis etc..keep your spirits up.sounds like your doing well..best wishes..

Hi Wagolynn.. Hope you are ok.. many thanks for the the advice regarding diet..im looking into it and trying to improve the situation..im due some more blood tests..they will check my esr and vit d levels..the ache in my right side continued.. not sure if it's a sprain or something else..i shall upd...

Hi Dav B Hope u are well..nice to hear from you..here we are at a similar postion with low gfrs..i agree it's a very disheartening conversation about the next stage but you just have to accept it.i hear youve suffered from gout..is that really painful?my uric acid levels are high but I never develop...

Hi Notso.. Nice to hear from you..yes we are exactly at the same stage with our gfr..i hope we can both maintain what we have got as long as possible..i have been a bit down recently with this development but I realise you have to deal with the situation.i had my blood tests repeated and one of them...

Hi Wagolynn Thank you so much for your response..its making a lot of sense regarding the diet situation..at the present time I feel I must be lacking a lot of essential nutrients.i am on the vegetarian diet but I am certainly not consuming the 5 a day..iv not had any restrictions put in place but I ...

Hi Freddyy Many thanks for your kind reply..ckd at an advanced stage is very unpredictable..my consultant has been monitoring my results and says that the decline has been going on since 2011..he estimates that I'll need replacement kidney dialysis within 5 years..i am worried if the decline is happ...

Thought I'd mention I got my results for yesterday's appointment and the creatinine has jumped back to 245.really strange as a little over a month ago it was 221..im disappointed as the gfr is back to 19..im not sure what I can do..i thought I'd drunk properly before.i do have a pain in my right sid...

Hi everyone.hope you are all well..not written for ages so I thought I'll post an update.well today I saw my consultant..i had previously had a high creatinine reading.it came down a little on a repeat test.this was all due to an infection.well I had a review with the doctor today.as my gfr is hover...

Hi Notso Good to hear from you..thank you for asking after me..i had my blood tests at the end of Jan.. the creatinine levels have come down to 221..so like yourself my gfr is hovering around 21/22..it is scary when there is a drop..i did have an infection at the time so maybe the reason..you're doi...

Hi Notso..thank you for your kind response..i can see we have had similar experiences regarding a drop in GFR..its hard to cope sometimes with a lower kidney function..i dread each blood test..always touch and go..im trying to get rid of my flu so I can get a true reading..and drink..its true some o...

Thank you Freddyy for sharing your experience..i relate to a lot of what you've mentioned..with my initial diagnosis of lupus an auto immune disease,I was getting a lot of symptoms,flu ,sensitivity to light..it took the doctors a year to find out the cause..my blood pressure was elevated bearing in ...

I agree with you Freddyy..i think when there is inflammation in the body the kidneys take a hit..just scary as it's the fear of the unknown..iv had a terrible cold.i think this has contributed to the gfr decreasing..my cough is lingering and I don't seem to be recovering..i have booked an appointmen...

Many thanks Tibbs for your kind reply..i have been drinking a lot more so let's hope it reflects in the result.iv tried to hold on to this function for a while but I guess when it's time I'll have to accept it.iv tried contacting the hospital but no response as of yet.i do feel more tired these days...

Hi there..iv had some scary news regarding my latest blood test results.i wonder if anyone has been in the same sort of situation..i have been on this journey of CKD for 25 yrs .due to lupus which hit hard on the kidneys..for the last 3 years iv been a stage 4..gfr has hovered around 22.the test I h...