Kidney Patient Guide

What a great post! Thanks for starting this. It's hard to believe that I started posting here over five years ago... just a few months before my transplant. At the time I had just started hemo and was scared @#$%$#$$%%!!!!! You guys were such a source of comfort and strength... I don't know what I w...

Hi cheryl,
Haven't spoken to you in a while...hope all is well.
Contact me if you get a chance.

Congratulations Ronnie!!
Hope all is well with you and the family. We'd love to know how you're doing these days.

Awesome news Christine! Enjoy, Enjoy, Enjoy your new life!!!
My thoughts and prayers are with you.

Hi Lulu, Well, I didn't make it to the TX Games, but I hope you had a great time, and were successful. Any gold medals by chance? :?: Let me know how things went. One of the transplant coordinators from my hospital went, and has been raving ever since. Hope you're doing well and feeling good. Take c...

Hi Cheryl, I hope you and the family are well and have enjoyed the summer. I can't believe it's practically over! I'm so sorry i haven't been in touch, but I had major computer problems, finally bought a new computer and then switched my internet service. As a result, I lost your email address. I'd ...

Hi Carolyn, I remember that list, it served me well. I'm pretty sure it was written by Cheryl from CT. Although I don't remeber everything she suggested, here are some things I packed, as well as a few others that I wished I'd had! In the meantime, my thoughts are with you and Richard. I know it's a...

Great news Carolyn!
Please keep us posted on what's happening. We'll keep you guys in our thoughts and prayers!

Great News!!!
Please keep us posted on what's going on.

Debbie, I don't mind you asking at all. I had plasmapheresis three times before and three times after transplant. It was a painless, although boring procedure... alot like dialysis. They used the same catheter that was used for dialysis for access. Each treatment lasted about 2-4 hrs. The nurse/tech...

So much has happened in the past 13 weeks post transplant, that I've lost track a bit, but here goes... Because I had an imcompatible crossmatch tx., I had three plasmapheresis treatments before surgery, and started taking 2,000 mg. of Cell-Cept and 3 mg. of Prograf every day for a week. After surge...

Natalie, VENT, VENT, VENT!!!!!!!!!! I'm sure many here understand what you're feeling. Sometimes, those close to us just aren't up to the challenge. I think a lot of folks have been disappointed by family or frineds who are scared quite frankly and don't know how to handle their fears, guilt, etc. B...

Cheryl,
I hope you're feeling better soon. It does sound as if you need to take it easy, but I'm not sure if you know how to do that! Let us know how today's appointment goes...I'm ceratin all will be fine.
Take care!
Dionne

Yvette,
I'm glad things worked out for you regarding dialysis, but even more for the spoiling you received from your husband! You deserve it.
Thanks for keeping us posted and continue to keep us informed. Take care!
Dionne

Amanda, There is hope!!! I am 9 weeks post transplant and doing well. I had a living non-related donor who was considered to be an incompaible match due to anigens, although we share the same blood type. I also have SLE, which complicates things regarding antibodies as well. My transplant team is pr...