Search found 25 matches

by morzov
Wed Mar 01, 2023 1:23 pm
Forum: The KPG Forum
Topic: End of mask wearing
Replies: 4
Views: 6559

End of mask wearing

I attended my renal unit this morning and was informed that from Monday of this week, mask wearing in the unit had been dispensed with! No notice, no consultation, no reason given. And I don’t just mean patients - it includes nurses and doctors too. When I saw a consultant I insisted he wore a mask ...
by morzov
Tue Apr 05, 2022 1:44 pm
Forum: The KPG Forum
Topic: My Covid experience…so far
Replies: 5
Views: 7464

Re: My Covid experience…so far

Following on from this thread and the earlier one about how back to normal people are. Difficulties with the CMDU aside (and actually now that treatment is triggered by an LFT why can't we just contact them direct and they look at the LFT result on line) I wondered if aanyone who had had Covid had s...
by morzov
Sat Jan 15, 2022 12:08 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127936

Re: Vaccines for Covid 19

Glad you had that result Thumps. Bit of a postscript to my experience. My regime has been AZ. AZ followed by Pfizer at beginning October 2021. ThereforeI was just 3 months post that 3rd dose. Have to say I was slightly uneasy at getting the booster at 3 months when the recommended period was previou...
by morzov
Wed Jan 12, 2022 8:56 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127936

Re: Vaccines for Covid 19

Sorry to hear people are having difficulties accessing their 4th or booster dose. No way GPs should plead ignorance as they have all been written to by NHS and I share the frustration regarding renal units, who have also been written to but if anything like mine have taken zero interest in the vacci...
by morzov
Wed Nov 03, 2021 6:23 pm
Forum: The KPG Forum
Topic: Azathioprine or Mycophenolic acid?
Replies: 4
Views: 6988

Re: Azathioprine or Mycophenolic acid?

Thank you so much Chris and Thumps for your encouraging replies. I'm really quite reluctant to change what I have been on for 15 years but I am going to have to do something faced with a declining function. I was warned about the side effects on the skin with Az and given I still do a fair bit of cy...
by morzov
Wed Nov 03, 2021 9:37 am
Forum: The KPG Forum
Topic: Azathioprine or Mycophenolic acid?
Replies: 4
Views: 6988

Azathioprine or Mycophenolic acid?

Looking to get some real world experience from anyone taking these meds. It is 15 years since my transplant and over the last few years my function has been declining - Creatinine now around 250. I had a biopsy a few weeks ago to determine what is going on and the consultants think that the decline ...
by morzov
Fri Mar 19, 2021 11:00 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127936

Re: Vaccines for Covid 19

Spotted this online today. Study in the USA of SOT patients who have had one dose of Pfizer or Moderna vaccine and antibody response.

https://twitter.com/mkwillicombe/status ... 9475227656

Results are not great.
by morzov
Thu Mar 18, 2021 5:09 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127936

Re: Vaccines for Covid 19

Interesting to read about people's experiences and views and that the emphasis is now moving to efficacy - in other words to what extent are we protected. That leads onto the question of what we would feel comfortable doing. My take on this is that there are general studies taking place such as the ...
by morzov
Fri Feb 12, 2021 4:12 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127936

Re: Vaccines for Covid 19

Got mine last week - AZ.

Don't know if it's related but I've developed an area of shingles. Had been feeling crap for a few weeks but since the spots/blisters appeared felt fine.
by morzov
Fri Jan 29, 2021 11:23 am
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127936

Re: Vaccines for Covid 19

Thanks for the replies and glad you have all had your first dose. I know that for flu jabs and pneumonia jabs renal units don't usually get involved but given how long we have all been shielding and the high mortality rate for what they call solid organ transplant patients I think vaccination is eve...
by morzov
Sun Jan 24, 2021 3:34 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 69
Views: 127936

Re: Vaccines for Covid 19

Interested to know if those being vaccinated getting it at their renal units?

My renal unit isn't doing them - no reason given - and says GP will contact me. They didn't seem terribly interested TBH.
by morzov
Wed Jun 10, 2020 1:48 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 135512

Re: Coronavirus

Agree with Sue and Thumps. In my view you just have to deal with the situation that is in front of you and make your own assessment of the risk involved. In my case I've always kept fit before and after my transplant which I think has helped massively . I took the view early on that if I lost that f...
by morzov
Wed May 20, 2020 2:17 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 135512

Re: Coronavirus

This looks a very good idea. Mobile renal phlebotomy service from Kings College Hospital.

More units should do it

https://twitter.com/KateBramham/status/ ... 1428293632
by morzov
Tue Mar 31, 2020 1:15 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 135512

Re: Coronavirus

Yes, I was reading it earlier. I actually started isolating/shielding last Monday on the assumption that I was in the group and told my workplace I’d be off for 12-weeks. They asked for a copy of the letter when it arrived which is why I started chasing it today. Very surprised to be told I wasn’t ...
by morzov
Sun Mar 22, 2020 10:51 pm
Forum: The KPG Forum
Topic: Coronavirus
Replies: 124
Views: 135512

Re: Coronavirus

The latest advice which seems to go further than the NHS advice, references the NHS letter that is going to be sent out this week and strongly suggests that those in the groups listed as extremely vunerable, which includes transplant patients, should not go out for 12 weeks: " You are strongly ...