Kidney Patient Guide

Thank you both. No, he’s not on statins. Yes, you’re right he needs to be a little more forceful with his GP. Had just wondered if anyone else had similar problems post transport.

Hi All, found this old thread about muscle pain/joint pain and wondered if anyone could offer further advice? My dad is 14 months past transplant, kidney is doing well. However in the last few months he has started to experience muscle weakness and joint pain in his wrists and knees, he can no longe...

Does anyone experience this post transplant? My dad is nearly a year post transplant and all bloods are good. Wonder whether a side effect of the anti rejection meds although only had this problem recently. Many thanks

Thank you to both Wagolynn and Chrisb for replying. I am pleased to say that things have vastly improved for my dad; he has seen a urologist who has explained bladder training and the need to give it time, at the moment it seems to be working. Happy New Year to you both.

Hi Chris My dad has PKD, been on dialysis and finally had a transplant in May. The transplant itself went well although it's been a long haul not helped by the fact he had to have another op in July. He has been experiencing exactly the same problem as you with the frequent urination and urgency and...

Thank you all for your replies. Op got postponed until 18 May, it's going to be a long week!

Can't quite believe I'm typing this but after the disappointment of two live donors being rejected as a match over the last two and a half years, my dad and his third doner have been given the go ahead and we have a date for two weeks time! I would be grateful for any tips or advice from any of thos...

Hi, When my Dad started on overnight APD he changed his car and bought a Belingo specifically to be able to fit all the supplies in. He has used it to transport a week's supply. He uses the Baxter APD machine and it packs away into a small case, very similar to the size of a wheelie cabin case you w...

Hello, my dad is on APD and to all intents and purposes it is working well, however he suffers from his skin itching. I know this is a side effect of the dialysis but wondered if anyone had any advice on how to relieve it. Many thanks.

Congratulations Dibs, so very pleased for you. Glad you got the call so soon after the last one, proves you made the right decision. Wishing you a speedy recovery and hope all continues to progress well, keep us updated as it's so uplifting to read positive stories. Enjoy your freedom! Best wishes.

Hi Newbie
Is it worth ringing the Baxters Helpline number to ask their advice? My Dad started on APD in October and has rung Baxters a couple of times; they have been most helpful. It may be worth a call, assuming your husband is using a Baxters machine that is.

Hi Birdman I'm sorry to hear that you've had such a difficult time of late. Have you seen this for London:- http://www.guysandstthomas.nhs.uk/resources/patient-information/kidney/holiday-dialysis.pdf It may also be worth ringing the York unit to ask if they know of any other units in Yorkshire offer...

Hi newbie My dad has very recently switched from CAPD onto the overnight APD Baxter machine. I had a query and emailed Baxters and they replied very quickly. The email address I used was: shs_technical_northampton@baxter.com. I am sure they will be able to give you exact measurements. I will also as...

Hi Birdman

Have you had any luck resolving your alarm frequency? Do hope you are having better nights.

Thank you once again Wagolyn, most helpful. Yes you are absolutely right - trial and error - it is just so individual. I find it so difficult that he never seems to get a definitive answer. His PET results were all good and within the acceptable range, ankle swelling much reduced but after a couple ...