Search found 120 matches

by bluemoon
Wed Sep 09, 2009 7:03 pm
Forum: The KPG Forum
Topic: Transplant Complications
Replies: 5
Views: 4829

Hi, I had exactly the same issue, the vein / artery running to the kidney became blocked or narrow. Lots of worry, was sat down and told I would loose it etc. In the end they put a stent in which opened the vein up and problem solved! Anyway, if its any consolation I'm 8 years post transplant and ki...
by bluemoon
Mon Jul 27, 2009 7:25 pm
Forum: The KPG Forum
Topic: Miniaturized dialysis device
Replies: 9
Views: 5404

I`m not sure how unachievable this would be, It seems to me that dialysis both HD and PD has not changed in principle in nearly 40 years, considering increasing costs of all things renal it must be time for a change. Or...maybe I`m clutching at straws...after the first six (awful) months my transpla...
by bluemoon
Sun Jul 26, 2009 3:56 pm
Forum: The KPG Forum
Topic: Miniaturized dialysis device
Replies: 9
Views: 5404

When I was transplanted my nephrologist said that if it lasted over 12 -15 years then I would probably have a dialysis implant rather than tubes and bags.

I`m now 8 years post transplant so looking at this looks like this might be correct. Fingers crossed :wink:
by bluemoon
Wed Jul 15, 2009 7:51 pm
Forum: The KPG Forum
Topic: Swine Flu Preparation..
Replies: 23
Views: 16552

Hi, I dont think it is overhyped. My 15 year old son is recovering from Swine Flu - he collapsed on Saturday and was pretty much out of it until Tuesday, its completly wiped him out and he is a fit and healthy teen. Dont forget `real` flu is anything but mild! Im on tamiflu as a precaution (constant...
by bluemoon
Fri Apr 03, 2009 7:42 pm
Forum: The KPG Forum
Topic: pred free regimes and bone problems
Replies: 4
Views: 4053

Hi Keith,

I`m 7 years post tx and have been on pred ever since. I`m on Didronel, this is given an a Prophylaxis as, fortunately I am symptom free. My consultant told me it was very effective so maybe you could try that?
by bluemoon
Tue Mar 10, 2009 9:31 pm
Forum: The KPG Forum
Topic: Advice please
Replies: 1
Views: 2228

Hello my son had exactly the same thing at the same age. When he was nine we found outhad one kidney that was atrophied and one that was large to compensate, this was caused by urinary reflux. The attitude in the hospital (in York) was to leave it alone unless it went wrong. He was placed on long te...
by bluemoon
Sun Mar 01, 2009 8:55 pm
Forum: The KPG Forum
Topic: Blood shot eyes
Replies: 1
Views: 2683

Blood shot eyes

Hi everyone, I hope you are all well. I`m finding that when I rub my eyes or sneeze or just about anything that the whites of my eyes will go bright red! This happens about 2-3 times a month and lasts a couple of days. No pain or anything like that but, boy does it make me look weird! Anyone else ha...
by bluemoon
Tue Dec 09, 2008 8:03 pm
Forum: The KPG Forum
Topic: Rachel (Res) and Steve
Replies: 78
Views: 87852

I really am very sorry to hear this news . My condolences to Steve.
by bluemoon
Sat Nov 22, 2008 6:53 pm
Forum: The KPG Forum
Topic: Cellcept (MMF) supply problems
Replies: 10
Views: 8989

Hello, I had the same problem for a long time, quite a few pharmacys would just refuse to supply it, said they had to order it as a `one off` too expensive and so on. I`m dont think it is really a supply problem just too much trouble... Anyway, heres how I`ve got around it. I now have a pharmacy acc...
by bluemoon
Fri Nov 07, 2008 7:05 pm
Forum: The KPG Forum
Topic: Q. for people on low-dose steroids
Replies: 20
Views: 12580

I take 7.5mg. I`m allergic to azathriopine so I`m stuck with the steroids :cry: I`m on no additional meds at all. I was told that as they are enteric coated and I have to them with food then I would have no side effects. I`m seven years post transplant and have had no side effects so I guess they ma...
by bluemoon
Tue Nov 04, 2008 8:59 pm
Forum: The KPG Forum
Topic: how far between appointments?
Replies: 7
Views: 6865

Hi, I`m seven years (and two days!) post transplant. I now go once every nine months and a blood test in between.
by bluemoon
Thu Oct 23, 2008 6:12 pm
Forum: The KPG Forum
Topic: Frothy Urine, but no protein
Replies: 11
Views: 57578

Hi, I am seven years post transplant and have always had frothy urine. At one point I would examine my urine in great detail; ie how frothy it was, quantity, output, colour etc. At clinic I was told in no uncertain terms that this is nothing to worry about and it depends upon how one pees (!) as to ...
by bluemoon
Tue Sep 16, 2008 6:41 pm
Forum: The KPG Forum
Topic: What should I do? suggestions welcomed
Replies: 7
Views: 5601

Hi, I work for the NHS and I dont go on any clinical area if there is a risk of infection, C Diff, D&V. In fact I am not allowed to. Your infection control policy should state that anyone immunosuppressed should not enter at risk areas. If it does and you do go into the home and are compromised,...
by bluemoon
Sat Sep 06, 2008 3:49 pm
Forum: The KPG Forum
Topic: Time between tx clinics
Replies: 10
Views: 8214

Hi all,

I go back every six months and have done since about 2 years post transplant.
by bluemoon
Fri Aug 08, 2008 3:45 pm
Forum: The KPG Forum
Topic: MMF/Cellcept problem!
Replies: 10
Views: 8867

Hi Keith,

I`ve took the 500mg tablets for years now, what sort of problems have you come across? worried once more....