Search found 36 matches

by Notso
Sun May 26, 2019 12:29 am
Forum: The KPG Forum
Topic: Tieing off fistula after transplant
Replies: 9
Views: 19704

Re: Tieing off fistula after transplant

I am 4 weeks post transplant and my nephrologist has already mentioned tieing off my fistula at a later date, all going well. He advised my of a very recent study showing that it is better for the left ventricle as well as having a positive effect on the actual transplant. I should add that I have h...
by Notso
Fri Apr 12, 2019 11:45 pm
Forum: The KPG Forum
Topic: Hospital stay after transplant?
Replies: 14
Views: 30684

Re: Hospital stay after transplant?

Thanks Beespatellas. I have found a unit block with a lift so the problem is solved.
by Notso
Sun Apr 07, 2019 8:06 am
Forum: The KPG Forum
Topic: Hospital stay after transplant?
Replies: 14
Views: 30684

Re: Hospital stay after transplant?

I have a post transplant question regarding how I'll be on release from hospital, about a week post op.
I'll be away from home and am looking at places to stay. Will I be able to walk up one flight of stairs after a week?
by Notso
Fri Apr 05, 2019 12:57 pm
Forum: The KPG Forum
Topic: Hospital stay after transplant?
Replies: 14
Views: 30684

Re: Hospital stay after transplant?

Thanks for all the replies. I am having a transplant on 29 April and starting to get a little nervous.
by Notso
Sat Feb 02, 2019 1:16 am
Forum: The KPG Forum
Topic: Tieing off fistula after transplant
Replies: 9
Views: 19704

Re: Tieing off fistula after transplant

There is research suggesting that long term, av fistulas may cause cardio problems and in particular, thickening of the left ventricle. This is relevant to me as I have mild hypertrophy of the left ventricle and will soon be having a kidney transplant. I am seeing my nephrologist on Tuesday and will...
by Notso
Mon Jan 28, 2019 11:15 am
Forum: The KPG Forum
Topic: Lucky me.
Replies: 3
Views: 14137

Re: Lucky me.

Thanks Wagolynn. :D
by Notso
Fri Jan 25, 2019 11:27 am
Forum: The KPG Forum
Topic: Lucky me.
Replies: 3
Views: 14137

Lucky me.

After what seems an eternity I have a date for a kidney, being 29 April. In reality it has been a little over 12 months which I realise is a short time for some on this forum who are still waiting. I have 4 siblings who all volunteered and one brother who won the prize and is donating. I count mysel...
by Notso
Tue Dec 04, 2018 12:25 pm
Forum: The KPG Forum
Topic: Nocturnal Haemo
Replies: 0
Views: 12963

Nocturnal Haemo

Check out this little number.

https://youtu.be/tZgZ_D4WtZc
by Notso
Sun Oct 07, 2018 10:43 pm
Forum: The KPG Forum
Topic: Transplant question
Replies: 10
Views: 17770

Re: Transplant question

Stephen, I wouldn't stress too much. I'm from Darwin in Australia and our kidney transplants are generally done in Adelaide, 2000 miles away. Should a Darwin recipient get the call they have a 3 1/2 hour flight between airports let alone the fact that there are only a handful of flights per day. I t...
by Notso
Wed Sep 19, 2018 11:00 am
Forum: The KPG Forum
Topic: Lost the race
Replies: 9
Views: 21834

Re: Lost the race

Thanks Wagolynn. I still haven't given up on a fisula yet but it's good to know all the options.
by Notso
Sun Sep 16, 2018 7:24 am
Forum: The KPG Forum
Topic: Lost the race
Replies: 9
Views: 21834

Re: Lost the race

A bit of an update. I've been on haemo for almost 6 months now. My youngest brother was unable to donate but the second youngest is now looking good so we will be flying to Sydney for further tests and to meet the transplant team down there so in 3 weeks or so I'll know whether it's all a goer. He i...
by Notso
Wed Apr 11, 2018 5:44 am
Forum: The KPG Forum
Topic: Lost the race
Replies: 9
Views: 21834

Re: Lost the race

Thanks Angie. It seems you won as I got to dialysis first. For me, dialysis has been great in that it has quickly moved me from almost total incapacitation to a situation where i am able to do everyday things and begin to build up my strength and stamina. I am still waiting on the prospect of a kidn...
by Notso
Tue Apr 03, 2018 11:20 pm
Forum: The KPG Forum
Topic: Lost the race
Replies: 9
Views: 21834

Re: Lost the race

Thanks Birdman. I too am feeling better now that I have started.

Prior to starting I had this idea that you became an invalid once that dialysis commences. In reality I was an invalid prior to starting as I was so ill. Dialysis has set me free - Happy Days.
by Notso
Thu Mar 29, 2018 10:25 am
Forum: The KPG Forum
Topic: Lost the race
Replies: 9
Views: 21834

Lost the race

I took a punt and lost. I ran out of kidney function before a possible transplant was organised. Consequently I'm the proud owner of a tunneled neckline as I did not have a fistula. It happens very quickly when it happens that's for sure. I've now had 3 consecutive days of haemo and now will settle ...
by Notso
Wed Jun 07, 2017 7:36 am
Forum: The KPG Forum
Topic: Gfr down to 19
Replies: 38
Views: 90486

Re: Gfr down to 19

thanks Sue and Wagonlynn. This transplant business would be very interesting even if I wasn't in need of one. I.must read more.