Search found 296 matches

by Aileen
Mon Apr 29, 2013 8:06 am
Forum: The KPG Forum
Topic: Transplant Success Rate / Rejection Rate
Replies: 6
Views: 8148

Re: Transplant Success Rate / Rejection Rate

I didn't realise that it was as high as 20%. I had a live unrelated transplant in Feb 2009. This was not a particularly good match (2/6 or a 112 mismatch) I have had no rejection episodes and have worked full time since recovery in a challenging role. My meds are, 1mg pred daily, 2.5 tacro daily, an...
by Aileen
Tue Jan 29, 2013 9:25 am
Forum: The KPG Forum
Topic: steroid reduction
Replies: 9
Views: 8559

Re: steroid reduction

Hi folks, just a quick update. Serum creatinine has returned to the low 70s since returning to 2mg prednisolone daily. This has been consistent through the last 4 blood tests so they have concluded that there was a degree of hypoadrenalism and subsequent renal perfusion also contributing to the rais...
by Aileen
Tue Jan 01, 2013 6:10 pm
Forum: The KPG Forum
Topic: steroid reduction
Replies: 9
Views: 8559

steroid reduction

Since Spring of what is now last year, I have been on a steroid reduction programme. My tx (pre=emptive, live donor) took place in Feb 2009, and was a mismatch of 112 or 2/6. I have been consistently well, with a creatinine in the 70s and corresponding eGFR also in the 70s. There have been no proble...
by Aileen
Sun Oct 28, 2012 6:03 pm
Forum: The KPG Forum
Topic: Got the call
Replies: 23
Views: 16931

Re: Got the call

Fantastic news, all the best for your recovery. Just follow the rules to the letter and you'll make good progress. Incidentally yours is where mine is, I got my husband's, which was a big, lean kidney and although it's noticeable, I love my bump! Keep posting your progress! :)
by Aileen
Sun Oct 28, 2012 12:45 pm
Forum: The KPG Forum
Topic: Regrets
Replies: 76
Views: 62963

Re: Regrets

Thelma, your shame is not misplaced, no-one leaves a transplant unit without knowing the minimum fluid required and in any event common sense tells you that half a cup of tea and a tin of crap is bound to be insufficient. I just wish posters would say what they REALLY think! especially posters waiti...
by Aileen
Mon Oct 08, 2012 5:20 pm
Forum: The KPG Forum
Topic: Regrets
Replies: 76
Views: 62963

Re: Regrets

The thing is, before I post, I always think about people who are yet to be transplanted, and by that I mean pre-emptive tranplants from LDs, as I cannot comment on any other starting point. I'm pretty sure that if I was fast approaching transplant now, I would have already unsubscribed from this lis...
by Aileen
Sat Sep 15, 2012 12:02 pm
Forum: The KPG Forum
Topic: Travel insurance - yes, again. Yawn.
Replies: 6
Views: 9437

Re: Travel insurance - yes, again. Yawn.

Hello Thelma, just back from 4 weeks in California and we paid just over £300 with Freedom Insurance (Cambridge based) This included insurance for both myself (3.5 years post tx with no rejection episodes) and also for husband (donor) plus insurance for potentially dangerous sporting activity (surfi...
by Aileen
Mon Jul 23, 2012 8:17 pm
Forum: The KPG Forum
Topic: Being sick
Replies: 5
Views: 6611

Re: Being sick

I forgot to say, in my case they know the nausea is part and parcel of the migraine, but they probably would investigate why you are being sick, if it continues. Hopefully it won't :)
take care

A.
by Aileen
Mon Jul 23, 2012 4:39 pm
Forum: The KPG Forum
Topic: Being sick
Replies: 5
Views: 6611

Re: Being sick

Hi Rachael, tx'd 3.5 years ago and results are consistently very good. The point to that is I suffer from migraines, and almost every time I have one, everything comes up i/c tx meds, migraine meds and breakfast!. I'm really not sure how long the tx meds take to digest but I know they have come back...
by Aileen
Mon May 21, 2012 4:26 pm
Forum: The KPG Forum
Topic: Steroid side-effect reversal
Replies: 15
Views: 14687

Re: Steroid side-effect reversal

to Thumps... in exactly the same position, am very well, creatinine still in the 70s three and a bit years post transplant, but my skin is becoming papery and dry especially over my knuckles, I bruise easily also. I am (after tx clinic today) down to 3mg pred daily, after 5mg daily for a good long t...
by Aileen
Tue Apr 17, 2012 1:17 pm
Forum: The KPG Forum
Topic: Holidays after Tx
Replies: 3
Views: 2985

Re: Holidays after Tx

Hi, I flew to California 7 months post transplant. Insurance was cheap as everything had gone well, no rejection episodes or reasons to return to hospital. You need to have a consultant's letter to list your meds, and to give contact details etc should you become well while out of the country. Best ...
by Aileen
Sun Apr 15, 2012 9:04 am
Forum: The KPG Forum
Topic: antibiotics
Replies: 2
Views: 2003

antibiotics

Hi folks, does anyone have any views/thoughts on antibiotics post transplant? Tx'd in 2009, all is well, but recently contracted a throat infection. Soldiered on with honey and lemon and all the usual comforters, but when I went to my GP on Friday, she said she really would advise I take amoxycillin...
by Aileen
Sat Apr 14, 2012 10:03 am
Forum: The KPG Forum
Topic: Travel Insurance Q
Replies: 11
Views: 9230

Re: Travel Insurance Q

Thelma - if you don't declare your existing conditions, then you can just get a basic travel insurance I guess. I take your point about flying back if you became unwell but it isn't always easy just to get on a flight at short notice (depending on your U.S. destination/time of travel and if it's a p...
by Aileen
Sun Apr 01, 2012 10:35 am
Forum: The KPG Forum
Topic: almost dead but not quite
Replies: 31
Views: 22252

Re: almost dead but not quite

Poor Pam. This is terribly sad. I have read Pam's optimistic posts since I joined in 2009 and loved her mainly upbeat approach to very challenging medical problems

News like this certainly puts other posters' dramas into context

Best wishes and warmest thoughts to Pam and her family

Aileen/Cambs/UK
by Aileen
Thu Mar 29, 2012 6:32 pm
Forum: The KPG Forum
Topic: Problems taking tablets
Replies: 15
Views: 16678

Re: Problems taking tablets

Pureserenity.... I'm sure you'll cope when you remember that the longevity of your transplant depends on you swallowing multiple tablets, some larger than others :)
Aileen