Search found 26 matches
- Tue Aug 16, 2016 7:07 am
- Forum: The KPG Forum
- Topic: got that call
- Replies: 12
- Views: 28392
Re: got that call
Thank you for all your good wishes; a little update from me. It's now been a little over two weeks since coming home, and things seem to be going well. All my blood results are looking good. My weight has come down by around 8kg since the operation, as the excess fluid they pumped in has been remove...
- Mon Aug 01, 2016 3:04 pm
- Forum: The KPG Forum
- Topic: got that call
- Replies: 12
- Views: 28392
Re: got that call
Congratulations and thanks for the update. It feels strange that after seeing various people and undergoing lots of tests to get on the list, that we end up just waiting. The only contact I seem to have with my transplant centre is when I send in my blood sample every three months. So it's good to ...
- Sat Jul 30, 2016 2:08 pm
- Forum: The KPG Forum
- Topic: got that call
- Replies: 12
- Views: 28392
got that call
I just wanted to share that I finally got "that call"! After 3 years 9 months of dialysis, I now have a transplanted kidney. I got called just as I started work, around 9.30am. Got transplanted in the early hours of the next day. I've just been released from hospital, yesterday. Quite a ro...
- Sat Feb 13, 2016 10:08 am
- Forum: The KPG Forum
- Topic: Whats next?
- Replies: 2
- Views: 6530
Re: Whats next?
Hi JonnyFox, So how long before I start to feel better? If at all? The team in hospital reckon one or two months. Is that accurate? This will depend on your own situation, and if you have any other issues. It took me 3 months to get back to work after my collapse into renal failure. I had bad anaemi...
- Thu Jan 21, 2016 2:34 pm
- Forum: The KPG Forum
- Topic: Has anyone had to change career due to kidney issues?
- Replies: 13
- Views: 37667
Re: Has anyone had to change career due to kidney issues?
I didn't realise there was an option for home dialysis, that is amazing. I am assuming that I would be required to buy any equipment I would need? I assume you are based in the UK? Ask your unit about home dialysis. Mine set up everything for me - people were sent to put in a new floor lining, do t...
- Thu Jan 21, 2016 10:19 am
- Forum: The KPG Forum
- Topic: Has anyone had to change career due to kidney issues?
- Replies: 13
- Views: 37667
Re: Has anyone had to change career due to kidney issues?
When I discovered I had kidney problems I was a model. That was put on hold once I had a nefrostomy tube and drain fitted for ten months whilst I awaited surgery. Its now looking likely according to my GP that dialysis is not too far away. I asked a few questions but mostly got the response of spea...
- Sun Jan 17, 2016 6:52 pm
- Forum: The KPG Forum
- Topic: holiday dialysis in india
- Replies: 1
- Views: 6681
holiday dialysis in india
over christmas/new year, i managed to visit india for the first time in 4 years, taking the plunge with holiday dialysis there. i went for nearly 3 weeks, doing 10 sessions of dialysis. if you're wanting to visit india, get in touch with nephroplus.com they were very supportive and helpful. I filled...
- Wed Dec 09, 2015 5:51 pm
- Forum: The KPG Forum
- Topic: fistular fitting upper arm
- Replies: 5
- Views: 13639
Re: fistular fitting upper arm
Hi I am due to have an upper arm fistula fitted in the next few weeks, ready for if/when I need dialysis ( kid function 15% creatinine level 3.9). Is it painful and what after effects will I get and what usage of my arm will are lose. Regards I have an upper arm fistula. In the operation they only ...
- Wed Sep 30, 2015 3:25 pm
- Forum: The KPG Forum
- Topic: needling issues
- Replies: 1
- Views: 6197
needling issues
I'm curious, do any of you self-needling on HD with buttonholes ever have those days when a needle just won't go in? I fairly regularly spend 10-20 minutes trying different angles etc, before succeeding. The other day, I was there 40 minutes, and had to give up and use a sharp. Two days later, the b...
- Wed Sep 30, 2015 3:16 pm
- Forum: The KPG Forum
- Topic: BKV AFTER TRANSPLANT.
- Replies: 13
- Views: 39719
Re: BKV AFTER TRANSPLANT.
thank you for the detailed post grey. this sounds like something all of us waiting for a transplant should be aware of. I don't think I had come across BKV before.
I hope you soon have things back under control.
I hope you soon have things back under control.
- Sun Sep 27, 2015 5:26 pm
- Forum: The KPG Forum
- Topic: algorithm for kidney matching
- Replies: 0
- Views: 11524
algorithm for kidney matching
kidney transplants again on tv. this time looking at the algorthm for matching up live donors - apparently it's called the "stable marriage" algorithm!
http://www.bbc.co.uk/iplayer/episode/p0 ... algorithms
http://www.bbc.co.uk/iplayer/episode/p0 ... algorithms
- Sat Sep 12, 2015 10:13 am
- Forum: The KPG Forum
- Topic: PATIENT VIEW RESULTS
- Replies: 6
- Views: 21202
Re: PATIENT VIEW RESULTS
What results do other FM's see on their Patient View results? I see my potassium, phosphorus and Hb levels mainly - I've put them into the table view for easy access. I also see urea, creatinine, eGFR, and a variety of others. The main result I'm interested in which isn't shown is HCT, which I need...
- Mon Aug 24, 2015 5:52 pm
- Forum: The KPG Forum
- Topic: bbc programme
- Replies: 9
- Views: 26015
Re: bbc programme
There is also another kidney transplant prog to look out for on the Beeb called Transplant and Trafficking (south west region) which tells the story of one of our regular newsreaders -Sabet Chowdry - who donated a kidney to his mother because she would have died before getting the call due to the l...
- Mon Aug 24, 2015 9:06 am
- Forum: The KPG Forum
- Topic: bbc programme
- Replies: 9
- Views: 26015
Re: bbc programme
yes, quite. my family often asks why I don't take something more tasty, and it's hard to explain what a treat my two small glasses of water in the day are! Anything sweet, even a cordial, just isn't the same.rheaybou wrote:but I had also been just as thirsty and will never get bored of water.
- Sun Aug 23, 2015 10:26 pm
- Forum: The KPG Forum
- Topic: bbc programme
- Replies: 9
- Views: 26015
Re: bbc programme
I've seen these. A word of warning that the second programme is more difficult to watch than the first. But it really brought the message home about the shortage of organs. I've now watched the second programme ( http://bbc.in/1UtIwbC ), and I see what you mean! They dealt with lung and heart patie...