Kidney Patient Guide

Oop well it seems i have touched a nerve back there with you Amanda what i was trying to say is, that is how i dealt with it and have not had things easy and also being ill can make you a negative person, stop pulling yourself down and i dont like you saying i have forgotton what its like to have ki...

Can i just say something to you all................prob not going to like what ive got to say but hey!! Well this is my take on it all and lets not forget yes we have kidney disease and yes its horrible and yes normal healthy people get on our nerves cause they dont understand and yes they only will...

Hi I went for annv check up, my 1st, yesterday and my consultant told me my parathyroid results are high, think it was 351, he also said my calcium is up too, then today the txp clinic called to say my cret has jump from 107 to 126 and have to go back next wk just for bloods. The consultant mentione...

Thank you both so much for replying Helen im sure that you have made a difficult choice and one where our health is concerned have to remember and making the decision not to must have been hard none the less, thank you for the support, i will keep trying, time will tell, once i have all the tests ba...

Alieen Hey god i know where has that time gone, im doing very good, finally, last yr was a bit up and down, spent a further 3 times in hosp following the txp, got cmv in early july, then was back in aug with water infection and then 2 dys before should of gone to spain on hol in oct got combylabacto...

Hi Amanda Thanks for your reply Dont Worry your not disillusioning me i know the facts, IVF is not an option for me and as we all know the outcome of that is not so great, have done that once and had to be stopp'd as wasnt responding to the tmt, i just feel that over the last 7yrs or so i have had o...

Quick question......... I know i am trying to do the impossible, but i have a new lease on life and am hoping for another miracle and while i had one last year and yes with my age and everything else against me, medication etc....i must keep having a go. Since January i have been getting into a more...

Amanda clare Thats fantastic news, well done, im sure everything will be ok especially as they are going to keep an eye on you, take care xx Amanda in CA I dont want to go down the route of IVF again, plus this time i will have to pay as before was through the NHS and waited 3yrs to get to the top, ...

Amanda Im with you on the not telling anyone, have been in touch with a fertillity nutrionist this week and she is sending me and hubby a hair test to check what good and bad minerals we have in our system which can affect getting pregnant, well esp at my age i am interested in what this will show, ...

Hi Amanda Just thought i would share with you my story, i am 43 just, had my 2nd kidney txp last yr, all going very well with that and my consultants said after the op to try if i wanted to but had to wait 12mths, which was in feb, i had my 1st txp in 83 lasted almost 24yrs, i know i have fertility ...

Hi Carol

I was told by the nurse who gave me iron that about 3mths after my fistula was done that as soon as that is in, you are entitled to free pescriptions, even if its not ready to be used.

Hope that you are well

Best wishes

Nicky

Hi Just wondering if any of you guys have suffered with cmv and then had problems with getting WBC to go up, mine is struggling, had the CMV in july have been on the valcangciclovior tabs since then, until last saturday when stopped, couple of weeks ago was back in hospital again with water infectio...

Hi Aileen I too was having probs with low BP not straight after txp, but god like you say lot less than before txp, like you say wierd to think you have opp prob ! Mine started to drop to like your results after i came out of hosp 3 wks ago with CMV, i have had the atenolol reduced since txp im on 7...

Hi Carol Have you been giving a time when you will start, has the fistula been done. I decided right from the beginning to go on the heamodiaylsis as had CAPD in the past and wasnt happy, i am talking 27ish years ago and i know things change but this was my choice and i was a lot happier going on th...

Hi there I had my 2nd txp back in feb, and up to 6weeks ago was doing great just on the verge of going to clinic once a month instead of every 2 weeks, then i started to feel very tierd, going off food, then i got pain high up in the top of my stomach, pain ive had before as have had a section of tw...