Search found 71 matches

by Johnylefox
Mon Feb 26, 2018 2:37 pm
Forum: The KPG Forum
Topic: How long have you had your transplant?
Replies: 15
Views: 22122

Re: How long have you had your transplant?

Igor.

43 years is phenomenal.

What is your secret?

Best wishes for number 2.
by Johnylefox
Thu Feb 22, 2018 9:38 pm
Forum: The KPG Forum
Topic: How long have you had your transplant?
Replies: 15
Views: 22122

Re: How long have you had your transplant?

10 weeks tonight.
Still tired.
But bloodwork has been great.
I felt better on dialysis (HD).
I do feel less ill but more tired for sure.
Anyway heres hoping for an improvement.
Good luck folks.
by Johnylefox
Thu Feb 22, 2018 9:33 pm
Forum: The KPG Forum
Topic: How many have returned to work after transplant?
Replies: 8
Views: 12045

Re: How many have returned to work after transplant?

Rheabyou, I am a surveyor.

I have been offered a phased return. Right up to the job interview I was gine, been rubbish every day since. Tired when I wake and all through the day.

Did you have any fatigue issues?
by Johnylefox
Mon Feb 19, 2018 10:23 am
Forum: The KPG Forum
Topic: Energy post TX
Replies: 3
Views: 5096

Re: Energy post TX

Thank you.
by Johnylefox
Sun Feb 18, 2018 10:59 am
Forum: The KPG Forum
Topic: Standard of care for "suspected" IgAN?
Replies: 3
Views: 5284

Re: Standard of care for "suspected" IgAN?

I was symptomatic with IGA in 2009. It was not diagnosed until 2014. By which time damage was substantial. I was under a Urologust in 2009 and 2012 but he determined the blood and protein in my wee was one of those things. Once diagnosed my nephrologist set a BP target of 120/85. This was achieved a...
by Johnylefox
Sat Feb 17, 2018 10:31 pm
Forum: The KPG Forum
Topic: How many have returned to work after transplant?
Replies: 8
Views: 12045

Re: How many have returned to work after transplant?

I had my TX on 14 December 2017. 9 weeks later I am thinking of going back. I have had a job offer. I am a professional and the work is desk based. I have been great for the last few weeks but the last couple of days have been sluggish. I intend to accept the offer and go back to work in March for 3...
by Johnylefox
Sat Feb 17, 2018 9:24 pm
Forum: The KPG Forum
Topic: Energy post TX
Replies: 3
Views: 5096

Energy post TX

Hello.

Had my tx 9 weeks ago.

I had a few good weeks then ladt 3 days sluggish.

Only did bloods last week and they were creatinine 120 eGFR 58.

I am right in thinking normal energy kevels take 6 months ir more to resume?

I thought I had cracked it!
by Johnylefox
Thu Feb 01, 2018 10:21 pm
Forum: The KPG Forum
Topic: Excessive Urinating After Transplant
Replies: 10
Views: 21963

Re: Excessive Urinating After Transplant

I passed at least 15 litres in the day or two after tx.
Today I am 7 weeks out and I have peed about 30 times today. I get the odd day when I need to go 2 or 3 times per hour. But never see any infection in my samples.
by Johnylefox
Mon Jan 22, 2018 12:18 am
Forum: The KPG Forum
Topic: Post TX Recovery
Replies: 1
Views: 17996

Post TX Recovery

Iga took my kidneys Dec 15 / Jan 16.

I received a tx from a paired exchange on 14 Dec 17.

Just over 5 weeks ago.

I do feel less toxic and generally better but fatigue is still an issue. Will I ever feel ready to go back to work? Will I always be tired?
by Johnylefox
Wed Aug 23, 2017 9:53 am
Forum: The KPG Forum
Topic: Donor is not a tissue match
Replies: 1
Views: 4865

Donor is not a tissue match

Having previously been advised that my donor was a 5/6 tissue match it nie appears he is 0/6.

Has anyone ever taken a 0/6 from a living relative and what was the outcome?
by Johnylefox
Tue Mar 28, 2017 3:22 pm
Forum: The KPG Forum
Topic: Donor has Left Bundle Branch Block
Replies: 0
Views: 4888

Donor has Left Bundle Branch Block

Will this prevent him from donating?
He is my cousin, 57 and otherwise healthy.
They have said they will check with Dr. to see if he can proceed.
by Johnylefox
Sun Mar 19, 2017 9:27 pm
Forum: The KPG Forum
Topic: Suspected Iga nephropathy
Replies: 4
Views: 9064

Re: Suspected Iga nephropathy

I was diagnosed January 2014 through biopsy although we have since identified symptoms going back to 2009. I was given a 10% chance of kidney failure within ten years. By January 2016 the kidneys failed. Been on dialysis since then. Cousin is donating to me in summer. Lost my job, my GF told me she ...
by Johnylefox
Sun Mar 19, 2017 8:48 pm
Forum: The KPG Forum
Topic: Mortgage
Replies: 4
Views: 8737

Mortgage

My partner of 9 years just bailed.
I have a tx coming soonish.
I gave enough money for a good deposit on a small house in Merseyside.
Does kidney disease or having a tx preclude you from mortgages?
Thanks
by Johnylefox
Thu Mar 09, 2017 12:47 am
Forum: The KPG Forum
Topic: Testing for Transplant
Replies: 1
Views: 4417

Testing for Transplant

My cousin offered to donate last May and started testing June. We are still ongoing. He missed one appointment in September and it took three months before they could see him again, that's life I suppose. Then he was given a 24 hours BP monitor to wear on 2 February. Still no results from this test....