Search found 3 matches

by tina
Fri Feb 25, 2005 3:07 am
Forum: The KPG Forum
Topic: suggestion... how about introducing ourselves??
Replies: 946
Views: 2284578

Intro...

I haven't been to this site for a while. My son was diagnosed with MPGN two years ago (two separate labs agreed it was MPGN, but one said type 1 and one said type 3 -- we've been operating under the assumption it's type 1) He is now seven years old. In December we were told he was in "remission...
by tina
Thu Jun 10, 2004 2:00 pm
Forum: The KPG Forum
Topic: Looking for info on pulse IV treatments vs oral steroids
Replies: 1
Views: 6557

Looking for info on pulse IV treatments vs oral steroids

My son has been treated for MPGN type 1 for the last 18 months. We thought things were going well, but now we're being told his protein levels are going back up. Something about protein and creatine being 0.55??? Our nephrologist isn't the best communicator sometimes and so we wonder about this trau...
by tina
Wed Jun 09, 2004 1:54 am
Forum: The KPG Forum
Topic: information please
Replies: 8
Views: 24050

To Shelly

I just found your post. My son also has MPGN. Two separate universities looked at the biopsy and both said MPGN -- one said type 1, the other said type 3. My nephrologist told us the treatment would be the same -- and he studied at the Univ of Cincinnatti, where the most research seems to have been ...