Kidney Patient Guide

My 6 year transplant anniversary , is coming in Dec.. I have had issue with calcium all along. Ca. is always on the high end. The last 3 years, I have not been allowed to take Vit. D, as the ca. will go even higher. My levels are lower than a normal person would have, but still acceptable for a tran...

I chose not to use any medication(weight gain) after diagnosis of kidney failure. I went "au naturel" . Kidney failure prep. book in US says :You are now to enter a exclusive club of people. Crying is what you need to do, when needed. I was informed about the grieving process at a kidney m...

EPO is a wonder drug, no bones about it!

I was on it pre-transplant and post for a short time. Took a little time to get it's full effect!
Only problem is, the hgb cannot get too high.


Jane

I travel between US and EU at least once every year. With large amount of meds. every time....I never ever have had any problems. I do not place any in my checked-in luggage. I do carry my diabetic items with the meds.. It looks like I am a really sick diabetes patient.. I have most meds. in my carr...

5 years post TX, I am still a bit nervous about getting CMV. I am a +donor/-receiver patient. CMV can be nasty I read, can effect the eyes among other areas of the body. IV anti-virals is used in severe cases. Since I have a good immune sytem these days (rarely get colds)..I am going to ask the cent...

Congratulations!
I remember ,when you posted after your first transplant.. you had an absolutely speedy recovery.
(Kept me upbeat about my own transplant shortly after.)
Hope your recovery is straight forward!
Jane

I would also recommend not to overdo it!
I am glad you have a plan, because you are going to have lots of energy!
http://stanfordhospital.org/newsEvents/ ... fford.html

Hello Thelma, Do not worry too much about the diabetes part post transplant! Yes, I got it...very high BS and treated with Insulin in the hospital after tx. Had tablets later at home. However, after I got off prednisone my BS improved. I prob. had, what they call metabolic syndrone...weight, cholest...

http://www.youtube.com/watch?v=77HdM5F8pdU

Since I might be there one day, I read about new inventions!

Jane

I have a transplant and I have gotten the flu vaccine every year! Just had the flu vaccine...buuut, I read the info to patient brochure(after) and find the vaccine reacts to Prograf and Cellcept :roll: I certainly had some reactions for 5 days..headaches, shaking /chills, depressed mood... Then it s...

Hi Thelma, You are a fairly new transplant patient, I can see. It took me a good 6 month to get everything under control. Did have Epo for 4 mo. post tx. My new kidney was a sleepy one! After about 10 month, I was full of energy. Today, I still am energetic and sometimes hyperactive, which is proper...

Cath, That is a never-ending story for me! I am now close to 5 years post transplant and i am taking alendronate for the 3rd time. Labwork soon! I said no to a yearly injection. I would rather have the parathyroid surgery and be done, but they cannot find them on the scans. Would like to know if you...

It is rarely discussed here...but, I find it increasingly difficult to have good solid relationship with the healthy population. My relationships are light and I use a lot of humor to survive. I do not have a pet these days, but spend incredible amount of time doing yard work. Healthy people with th...

Do you have to report you had a transplant! It never entered my mind...was told I should not drive for 8 weeks by center. I would say you are more "awake"( unless one takes strong pain meds.) with a transplant, which is major surgery, like other major surgeries. For me , it took longer to ...

http://www.medicare.gov/Dialysis/Include/DataSection/Questions/SearchCriteria.asp?version=default&browser=IE%7C9%7CWindows+7&language=English&defaultstatus=0&pagelist=Home Hello...... and you need a lot of luck! US citizens on dialysis get on medicare..if they have no private insuran...