Kidney Patient Guide

Hi all, Thanks for all your input! I need it, we are in despair here!! Our doctor here in Sweden (who is originally from the USA) is the only pediatric nephrologist for the whole of southern Sweden and she takes patients only 1½ days a week the rest of the time she researches. She is ok and has b...

Hi Brenda + others, Things with Andreas är about the same, except we are doing the prednisolon limbo to try and get rid of the protein in urin. Also the doc has just added Cellcept to his list of meds. (pred., cozaar, epo and cyclosporin) Today i told her I do not want him to be on dialysis waiti...

Hi all, Background: My son Andreas, now nearly 15. Nephrotic Syndrome at age 2, later diagnosis changed to FSGS. 2 biopsys. Has been on Cyclosporin (sandimunn neoral) the last 12 years. Has protien leakage attacks about 2 times a year, treated with highdose cortison, takes about 2 months in all and ...