Kidney Patient Guide

Hi there, I took up cycling in 2012. I have been doing it on and off every since, and yes I have had much the same problems. Although I usually take cycling nutrition, except anything protein, I would strongly recommend asking your renal team first. Anything like energy tablets and gels are relative...

Hello ladies & gents, I am a bit of an old face from what appears to be a bit of a bygone era.... in regards to this site, so let me just reintroduce a little. I'm Steve, from England.... diagnosed with ESRF, in 2002, straight in to dialysis with no notice. Had a TX in 2003, and have lived happi...

Hi Andy.... High Tacrolimus levels can increase blood pressure, possibly harm your kidney (nephrotoxicity) and in some cases (as you know) the tacrolimus can cause high EBV levels, which in turn can cause abnormal activity in the Lymph system.... in some cases can cause post transplant lymphoma, but...

Nelly is coming home!

Am chuffed to bits for you Nelly... really I am, couldn't happen to a nicer person!

Lots of love
Steve

I daresay this is another cost cutting measure!

Let us know how you get on with it

I just eat food..... I don't buy organic.....then again.... I am put off by the exorbitant prices.....in these hard times, I know what food I'll be buying....if it tastes nice and is healthy (or if not) and is of good value for money, I'll eat it....fair enough.... I've got kidney failure.. But do I...

So this guy wants the kidney back..... even though medically speaking it would be utterly useless to him for one, removing the kidney whilst it still works could be fatal. How utterly selfish, utterly STUPID - god there are some absolute morons about aren't they? Honestly, some people really haven't...

Welcome back cyn, lovely to see you

Steve

Hi everyone. I would just like to pass on my thanks, on behalf of my own family and Rachel's family. This has been a tremendously tough for all those who knew and loved Rachel. Only 4-5 weeks ago, I thought, and many others thought Rachel would survive and beat Non-Hodgkin's Lymphoma. It came as suc...

Hi there Thank you for all your messages. Like Rik says, Rachel's Lymphoma has moved into the central nervous system, the consultant said it is a near impossibility to be cured. Rachel can be treated and have her life prolonged with very high dose chemotherapy, but unfortunately, she will just relap...

I'm having problems getting hold of Cellcept as well, apparently they have "restricted deliveries" whatever that means. I did manage to get 112 of them on Friday thankfully, so for now at least I am ok, but we'll see in a months time. Strange though, last time this happened to me, I went t...

Hi there Sarah! Your results will not be relative to how you feel most of the time. Your doctor won't just take into consideration your results, they will want to know how your body is coping with the decline of your kidney function and when it becomes apparent that you need dialysis to "stay a...

Hi there,

Thanks for all your kind messages of support, I shall pass them onto Rachel when I see her in hospital tomorrow - she's in good spirits at the moment, knowing that people on here are thinking of her and fighting in her corner is priceless.

Thank you
Stevie

Helen, I'm not a Guy's patient now, but was for four months when I had my tx. They just told me to phone the ward (Richard Bright Ward is it still?) and get yourself there, they didn't take no crap, if they thought there could be something up then you go straight there, is what I was told, better sa...