Search found 1114 matches

by Thumps
Wed Apr 10, 2024 4:41 pm
Forum: The KPG Forum
Topic: Taste and Digestion
Replies: 2
Views: 44

Re: Taste and Digestion

I wish I had any knowledge to offer! It does sound quite frustrating!
by Thumps
Wed Feb 21, 2024 10:22 am
Forum: The KPG Forum
Topic: Possible forum downtime
Replies: 7
Views: 1101

Re: Possible forum downtime

Thanks for the heads up!
by Thumps
Tue Feb 13, 2024 10:45 pm
Forum: The KPG Forum
Topic: Much to think about
Replies: 3
Views: 432

Re: Much to think about

Gosh that is a lot!! Deep breaths...

I'm currently working out whether I want to pursue a liver transplant (my PKD is also PLD, yay).

Wishing you all the best
by Thumps
Sat Feb 10, 2024 1:25 pm
Forum: The KPG Forum
Topic: Forum downtime
Replies: 1
Views: 470

Re: Forum downtime

Thank you admins! :)
by Thumps
Wed Jan 03, 2024 6:08 pm
Forum: The KPG Forum
Topic: Merry Christmas
Replies: 3
Views: 4738

Re: Merry Christmas

Happy New Year folks!
by Thumps
Fri Oct 13, 2023 3:46 pm
Forum: The KPG Forum
Topic: Blood pressure drugs - what are you taking?
Replies: 3
Views: 8113

Re: Blood pressure drugs - what are you taking?

Thanks both. Looks like it's time to give the -prils a try!
by Thumps
Wed Oct 11, 2023 9:10 am
Forum: The KPG Forum
Topic: Blood pressure drugs - what are you taking?
Replies: 3
Views: 8113

Blood pressure drugs - what are you taking?

Hello! I've been fine on just Bisoprolol for the last 15(?) years but it's no longer enough (partly I suspect due to my polycystic liver now making its presence felt). I re-started Doxazosin a couple of weeks ago, as it was what I took before my Tx, but it's made me super drowsy and dizzy so I need ...
by Thumps
Mon Sep 18, 2023 9:42 am
Forum: The KPG Forum
Topic: Covid continues to loiter
Replies: 2
Views: 7566

Re: Covid continues to loiter

Yeah, i got an invite for flu, thinking they may do both at the same time now?
by Thumps
Fri Aug 25, 2023 8:08 pm
Forum: The KPG Forum
Topic: Ticky Ticker and ReSPECT form
Replies: 3
Views: 8540

Re: Ticky Ticker and ReSPECT form

Ooh. that's a new one on me
by Thumps
Mon Aug 07, 2023 7:39 am
Forum: The KPG Forum
Topic: Why do long term grafts fail?
Replies: 1
Views: 5257

Why do long term grafts fail?

I know this isn't active much anymore but had a question which I wondered if anyone here had ever discussed with their nephrologists: When you have a long term graft, why does it fail? I'm coming up for 15 years post-tx, and painfully aware that when I had the op this was considered an optimum lifes...
by Thumps
Tue Jul 25, 2023 10:42 pm
Forum: The KPG Forum
Topic: Rubbish veins
Replies: 5
Views: 9713

Re: Rubbish veins

That's definitely worth knowing!!
by Thumps
Sun Jul 16, 2023 5:04 pm
Forum: The KPG Forum
Topic: Opinions please egfr 15
Replies: 4
Views: 9381

Re: Opinions please egfr 15

Having used EPO for a while now I totally get why it's a performance enhancing drugs!
by Thumps
Sat Jul 08, 2023 1:44 pm
Forum: The KPG Forum
Topic: Claiming benefits
Replies: 6
Views: 11975

Re: Claiming benefits

Traffic on the forum has dropped off a lot since the pandemic, but if you search (top right hand corner) you might find something useful? Hope someone else has better knowledge. All the best
by Thumps
Sat Jul 08, 2023 8:14 am
Forum: The KPG Forum
Topic: Claiming benefits
Replies: 6
Views: 11975

Re: Claiming benefits

Hello I'm afraid I don't know a huge amount about the system as I'm still fortunate to have a working tx. However the National Kidney Federation has a helpline for such things, they may be better placed to help https://www.kidney.org.uk/help-with-financial-support The Citizens Advice Bureau also do ...
by Thumps
Sun Jun 25, 2023 8:51 pm
Forum: The KPG Forum
Topic: anybody young people with ckd? reassurance?
Replies: 5
Views: 8850

Re: anybody young people with ckd? reassurance?

I hear you - I got diagnosed with CKD at 19, been medicated since 24, had tx and all that. It's horrible feeling like everyone else in clinic/on ward is so old. Most kidney units have a young persons' group, and I know the Kidney Charities do. I'm in. my 40s now but I vividly remember feeling as you...