Search found 1060 matches

by Thumps
Mon May 10, 2021 5:04 pm
Forum: The KPG Forum
Topic: Post renal transplant a week or two after symptoms
Replies: 1
Views: 48

Re: Post renal transplant a week or two after symptoms

Welcome to the rollercoaster! Recovery from your transplant is not linear, there are ups and downs and scares and reassurances and all kinds of fun but the more time passes the easier it gets and the better we eventually feel. Wishing you all the best!
by Thumps
Wed May 05, 2021 8:08 am
Forum: The KPG Forum
Topic: Pfizer 2
Replies: 2
Views: 766

Re: Pfizer 2

My second pfizer left me with a three day hangover, it was rubbish! Hope you're feeling better now!
by Thumps
Thu Apr 08, 2021 11:31 am
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Re: Vaccines for Covid 19

I had Pfizer, and I also chose to take the calculated risk of cutting back my immunosuppressants by half the week after I had the jab (basically cutting out my evening doses) to give my immune system a fighting chance. I am NOT suggesting anyone should do this - it was a personal choice based on pre...
by Thumps
Tue Apr 06, 2021 2:14 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Re: Vaccines for Covid 19

So - had my second dose of vaccine brought forward, had it on Thursday. Properly knocked me back for about 3 days.

Good news is I did a private antibody test the day before my second dose and it looks like i've had a reasonably strong reaction to the first dose of vaccine which is great!
by Thumps
Sun Mar 21, 2021 2:28 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Re: Vaccines for Covid 19

Oh no. That is not good reading.
by Thumps
Thu Mar 18, 2021 5:25 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Re: Vaccines for Covid 19

I also pointed out to the OCTAVE researchers that they'd left their recruitment rather too late, but I suspect they were tied up in ethics forms. Real shame. I'm so frustrated that we're hearing nothing about possible efficacy for us. I'm hearing news about over 70s and cancer patients but nothing a...
by Thumps
Fri Mar 12, 2021 5:37 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Re: Vaccines for Covid 19

When you say your GP is arranging for you to have a test, what kind of test do you mean? An antibody test?

My second shot is also mid-April, wondering if there's a way i can do the same.
by Thumps
Mon Feb 08, 2021 9:55 am
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Re: Vaccines for Covid 19

If you're over 50 they'll be contacting you sometime before May for a vaccination anyway :)
by Thumps
Mon Jan 25, 2021 10:22 am
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Re: Vaccines for Covid 19

I had mine done at the hospital where my renal unit is, but it wasn't in the renal unit, just part of the overall vaccine centre.
by Thumps
Thu Jan 21, 2021 12:02 pm
Forum: The KPG Forum
Topic: Vaccines for Covid 19
Replies: 41
Views: 4950

Vaccines for Covid 19

Hi folks - wanted to start a thread so fellow transplant patients could share their experiences around the Covid19 vaccination process. I've been invited to my local hospital for mine on Saturday, with the second dose booked in for early April, 11 weeks away. Has anyone else had theirs yet? Which on...
by Thumps
Tue Jan 19, 2021 3:01 pm
Forum: The KPG Forum
Topic: should i go to hospital with GFR 22
Replies: 2
Views: 564

Re: should i go to hospital with GFR 22

Hello there - the short answer to your question is no, there's no specific need to go into hospital with a eGFR of 22. Many people can live a pretty normal life with a stable eGFR of that level (I did for a number of years). However - you don't say in your post if you have a diagnosis of *why* you h...
by Thumps
Fri Jan 15, 2021 12:59 pm
Forum: The KPG Forum
Topic: Waiting for more tests
Replies: 2
Views: 658

Re: Waiting for more tests

I would also advise against doing too much Googling. Very hard to tease out what might be true vs what might not and self diagnosis is frequently an exercise in fear! More tests is the way to go. Good luck!
by Thumps
Mon Dec 28, 2020 11:50 am
Forum: The KPG Forum
Topic: Hey guys new member Kelly
Replies: 2
Views: 1430

Re: Hey guys new member Kelly

Hi Kelly! Nice to see you here. I've never been on dialysis but I have had a double nephrectomy shortly after my transplant. Wishing you all the very best!
by Thumps
Tue Dec 15, 2020 3:42 pm
Forum: The KPG Forum
Topic: Dialysis?
Replies: 15
Views: 2749

Re: Dialysis?

Yeah, basically :)

As Wagolynn says, glad you're feeling a bit better!
by Thumps
Wed Dec 09, 2020 1:46 pm
Forum: The KPG Forum
Topic: Dialysis?
Replies: 15
Views: 2749

Re: Dialysis?

I agree re: oximeter, not helpful specifically for iron depletion.

I got into a habit of having regular (quaterly??) iron infusions, didn't notice a huge energy surge except for when they were closely aligned with my EPO injections, when I felt like an Olympic athlete by comparison! 8)