Search found 631 matches

by R30
Mon Dec 18, 2017 9:40 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 59992

Re: Cycling and renal failure

Woah, sorry to hear that you are recovering from an accident Chris, that's grim. I can fully appreciate how frustrating this will be for you, although it sounds as though you need to rest your body for a bit to recover fully. Accidents on the bike can be truly awful so you have my sympathy. My longe...
by R30
Mon Dec 18, 2017 10:57 am
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 59992

Re: Cycling and renal failure

[quote="Chris Wright"][quote="R30"] I've already experienced the dreaded 'bonk' recently for the first time and am very keen to avoid it again. It was interesting to see you said that I should stop every hour, that may be where I'm going wrong. I'm used to putting in 3hrs without...
by R30
Sun Dec 10, 2017 10:00 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 59992

Re: Cycling and renal failure

Thanks for the info Stevie, really appreciate it. Unfortunately seeking information from my renal team has been a little disappointing: my consultant says I cannot use gels, or any other sports nutrition and then referred me to the dietician, while the dietician had no idea and referred me back to m...
by R30
Sun Dec 10, 2017 9:47 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 59992

Re: Cycling and renal failure

[quote="Rik"]Ruth!! wow ... how wonderful to see your name pop back up again :D :D :D another old name from the board ... Stevie ...is also a keen cyclist ... he was in this year's London-Surrey 100 ... I'll get in touch and see what his dietary planning was ...[/quote] Hey Rik! :D :D :D G...
by R30
Fri Dec 01, 2017 7:05 am
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 59992

Re: Cycling and renal failure

These look great, and thanks for the info. Unfortunately they only ship to the US or Canada and I'm in the UK. Never mind, it makes me realise that there are more products out there than I thought.
by R30
Mon Nov 27, 2017 9:25 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 59992

Re: Cycling and renal failure

Hi Chris, Thanks for your response; great to meet a fellow cyclist. Don't mind you posting it on your club forum at all - any help would be greatly received. There is no problem with the low k flapjack per se, but I'd rather be able to take something other than just them for the entire 100 miles. So...
by R30
Sun Nov 26, 2017 10:00 pm
Forum: The KPG Forum
Topic: Cycling and renal failure
Replies: 18
Views: 59992

Cycling and renal failure

Hi All, It's been a VERY long time since I posted on here regularly. Essentially I had a live kidney transplant from my mum in October 2004 that was doing well until I came down with glandular fever a year later, and then had a bout of rejection a couple of years later (lost 50% function in 10 days)...
by R30
Sun Jul 30, 2017 6:47 pm
Forum: The KPG Forum
Topic: Anyone experienced worm-like white discharge in urine?
Replies: 28
Views: 451526

Re: Anyone experienced worm-like white discharge in urine?

Every time I've noticed this in my urine it has been sent off for analysis. Every time the hospital have told me that it's excess protein and nothing to be concerned about. Also tends to happen in women more if they are menstruating as well.
by R30
Mon Aug 29, 2016 7:37 am
Forum: The KPG Forum
Topic: EBV Virus
Replies: 4
Views: 12839

Re: EBV Virus

I also had EBV less than a year after my transplant in 2004, although I didn't - thankfully - get PTLD. I work at a boarding school so there's always a risk that I'll pick up some type of viral infection. What I found was that my transplant started fairly fast rejection with the EBV; I went from 63%...
by R30
Mon Aug 29, 2016 7:30 am
Forum: The KPG Forum
Topic: I don't know what to expect.....
Replies: 4
Views: 12575

Re: I don't know what to expect.....

Hi Kevin, I had a live donation in October 2004 from my mum...she was 70 at the time. Both of us are doing well and at the age of 82 now she is still going strong. As others have said, the hospital will test any potential donor until they are fed up to the back teeth (not literally), but this is all...
by R30
Fri Oct 05, 2007 7:31 am
Forum: The KPG Forum
Topic: Disability Discrimination Act
Replies: 4
Views: 5397

Disability Discrimination Act

Dear all It has been quite a while since I posted on here, and it is good to see so many new 'faces'. :D I've run into a potential problem at work over the past couple of days requiring me to check out the DDA as mentioned above, and would invite your views. I cannot find exactly where in the DDA we...
by R30
Tue Sep 11, 2007 7:09 pm
Forum: The KPG Forum
Topic: Live related donation?
Replies: 14
Views: 12010

Hey JMan,

I had a living donation three years ago and was told that my status on the register would remain until I had been through the operation, and they were certain the new kidney worked; only then did I get removed (apparently).

Hope this helps!
Ruth
by R30
Thu Jun 14, 2007 8:18 am
Forum: The KPG Forum
Topic: Memory loss
Replies: 14
Views: 11312

Yep, memory loss has been a constant problem for me since I had anaemia before I started dialysis (now transplanted 2.5 years). Unfortunately it's not got better with me, but taking cod liver oil does seem to help a little - in terms of the fact that I can at least recognise faces around me (just ki...
by R30
Mon May 14, 2007 10:31 am
Forum: The KPG Forum
Topic: Irritability / intolerance etc
Replies: 23
Views: 19783

Hey Keith Sorry to hear of your intolerance issues. Not being on steroids myself, I can't claim 'roid rage, but do find myself going through periods of intense irritability and intolerance post-tx. Somedays (such as today) when I am hanging with tiredness, I am serene and calm as even the thought of...
by R30
Mon May 14, 2007 10:27 am
Forum: The KPG Forum
Topic: Get well wishes for RachaelUk
Replies: 15
Views: 13471

Hey Elaine

Just read this now. So sorry to hear that Rach has been in hospital with an infection. How is she feeling now, and has it cleared up?

Wishing you all the best,
Ruth x